I want to encourage everyone whose lives are touched by a young lady with Rett Syndrome to watch this presentation given by Monica Coenraads. It gives a wonderful overview of what Rett Syndrome is as well as the past, present, and future in research. The end of this video reviews the different approaches that are being developed to treat and/or cure our kiddos - it is so exciting and motivates me to keep working hard each day to raise awareness and financial support to continue their efforts! I continue each day to pray for our cure!!!
On June 28, 2009 Dr. Aleksandra Djukic, Director of the Rett Syndrome Center in the Bronx, NY hosted the first of what will be quarterly Parent Gatherings. Monica Coenraads,RSRTExecutive Director, gave the following presentation.