Since Sunday/Monday, Sophie has had an increase in her coughing. I have purposely left it for a few days just to see if anything was developing, and also wondering whether I was noticing something that wasn't there, due to knowing she had pseudo lurking.
However, something is definately going on. Sophie always has a cough that sounds like croupe, this is because she has scar tissue in her trachea from her TOF surgery. When air passes along her trachea, it causes the weak area to vibrate as it is quite floppy and in turn, Sophie produces the loudest sounding cough you have ever heard. This cough is very distinctive and crisp in sound, and it's usually a change to this cough that first alerts us that something sinister is brewing.
She's starting to cough at night which isn't normal, she's got a very junky sounding cough in the morning and is cough, cough, coughing throughout the day. She's also producing huge amounts of sputum but this remains clear in colour. The only other changes to her baseline are that she is sleeping a little more than usual.
I text her CF nurse earlier to see whether we should treat or hang on until clinic on Tuesday. She has promptly phoned me back and we are going to try some Augmentin duo until Tuesday, and possibly switch at clinic if things aren't improving. She will also courtesy call us on Firday to see how she is before the weekend.
I cant grumble though as Sophie has remained so well since November and her ivs in between have been to try and eradicate pseudo and also cover for when her port was fitted.
I just have a feeling ivs could be looming.
I hope I am wrong though and this is just a viral thing that'll pass quite quickly. She's well in her self otherwise.
We are seeing Ruth on Friday for more 'playtime' in outpatients so will fill you all in on what we get up to this week.
I hope everyone else is doing okay at the moment and again, love to all those struggling.