(This picture was taken in our front yard on a love sac the kids had just
received from Grandpa and Grandma. They rolled into the yard before it ever made it into the house. It was the jumping bag /entertainment for the day!)
I want to thank each of you who have sent comments, e-mails or texts, prayed, fasted, brought by cookies, flowers and many other ways of showing your love and concern to our family. Through all of this I have been able to find the necessary comfort and strength to continue to go on with life, to take care of my family, and to find joy in each day I have with Mason. Though even with this comfort, I'm not trying to fool anyone. I still cry each day, several times a day, as I think about the day of Mason's Heart Cath, Dr. Everett coming out of the Cath Lab with red teary eyes saying she needed to talk to me, and the devastating news about Mason's failing heart unable to receive a transplant. This broke my heart, shattered my hopes, and left me numbering the weeks and days I have to spend with my baby. But I can't even imagine going through this alone, without the comfort of wonderful family and friends, a loving Father in Heaven, the Gospel of Jesus Christ, and a supportive "heart" community.
After fasting and praying along with everyone who joined us (and still continue to...thank you!!) I feel comforted with our decision to send Mason's medical information on to a few children's hospitals who specialize in heart-lung disease for their opinions and advice. As a mother I need to know I did everything possible to give my baby a chance at life. Maybe, there is another miracle out their for our Mason. Or, maybe I just need more information to know and accept that we've done all we could to optimize our baby's quality of life. Although I feel like my hopes were shattered and I am trying not to get my hopes up once again as we seek more opinions, hope and faith are all I have to hold onto now. As I go forward with this faith and hope I am comforted knowing there are so many praying for Miracle Mason and our family.
The good news is Mason is doing really well. He has seemed much stronger the last two weeks.Watching him scoot around the house and continue to get into all the cabinets and drawers with a big smile on his face, it is hard to believe how truly sick his little heart and left lung really are! He is trying to crawl up stairs and pull himself to a stand. He needs a bit of help, but will now put weight on his feet and actually enjoys it. He will also scoot on his bum all the way down the stairs. Not just a couple of steps, but 17 steps from our upstairs to our main floor, and then again down another 15 steps to the basement. He laughs with each step! It is sooo cute! I need to get in on video. These little things, which are actually huge things for sweet Mason, give me comfort too!
Thank you again and again for all your love and support! I will continue to update as needed. Dr. Everett has been out of town, but we will begin this week to send Mason's information on to other hospitals.
After fasting and praying along with everyone who joined us (and still continue to...thank you!!) I feel comforted with our decision to send Mason's medical information on to a few children's hospitals who specialize in heart-lung disease for their opinions and advice. As a mother I need to know I did everything possible to give my baby a chance at life. Maybe, there is another miracle out their for our Mason. Or, maybe I just need more information to know and accept that we've done all we could to optimize our baby's quality of life. Although I feel like my hopes were shattered and I am trying not to get my hopes up once again as we seek more opinions, hope and faith are all I have to hold onto now. As I go forward with this faith and hope I am comforted knowing there are so many praying for Miracle Mason and our family.
The good news is Mason is doing really well. He has seemed much stronger the last two weeks.Watching him scoot around the house and continue to get into all the cabinets and drawers with a big smile on his face, it is hard to believe how truly sick his little heart and left lung really are! He is trying to crawl up stairs and pull himself to a stand. He needs a bit of help, but will now put weight on his feet and actually enjoys it. He will also scoot on his bum all the way down the stairs. Not just a couple of steps, but 17 steps from our upstairs to our main floor, and then again down another 15 steps to the basement. He laughs with each step! It is sooo cute! I need to get in on video. These little things, which are actually huge things for sweet Mason, give me comfort too!
Thank you again and again for all your love and support! I will continue to update as needed. Dr. Everett has been out of town, but we will begin this week to send Mason's information on to other hospitals.