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bunkered down

Posted Dec 02 2009 12:00am
Cold and flu season sucks. My baby girl has a cold and desatted to 79 last night a few times. I called the pulm nurse and turned her O2 flowrate to 1 1/2 liters. She's now 94 % and sleeping like a baby. No PT today. This season is starting out worse than last year. We are no longer taking her out to stores, restaurants, etc... Ava is bunkering down for the Winter.

Ava saw GI yesterday and we will be discussing g-tubes in February at her next feeding team appt. Her OT isn't helping and she just can't manipulate food in her mouth as she should. She has moderate - severe hypotonia in her mouth and jaw too. She can't stay on this liquid milk/carnation/rice/simply thick diet forever. We have a 3 month grace period to work an OT miracle. To be hoenst, I'm not stressing over it. Everything happens for a reason, right?

We decorated the tree for Christmas, which was a big hit. I have no ornaments on the bottom half of the tree, although I couldn't tell you why. I do have my suspicions....
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