Chiari Malformation Community - People

I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system. It is chronic, progressive and incureable. In addition, I have neuropathy, several inoperable back issues and other health problems I deal with on a daily basis. Goals I am Working On: Goal #1: I am improving my...

Suffering from digestive issues since I was 17 years old I have learned how to accept and get through each struggle with faith in God, support from my amazing husband and humor. I have been through almost everything you can imagine if it deals with the digestive system. My GI calls me his "challenge" patient. If I had a dime for every time a doctor said they weren't sure what was wrong with...

I am currently on disability from my job due to Cervical Dystonia. In additon, I have Grave's Disease and a few other health issues.I enjoy reading and writing short stories.

I am a graphic designer dealing with the combined conditions of Chiari Malformation, Ehlers-Danlos Syndrome and Fibromyalgia. I am on a constant quest for information on how to manage my health conditions. I love sharing info. with others!

I am a mom to 8 beautiful children, 7 here on earth and one in Heaven. I have a bicornuate uterus and was told that I would have a hard time carrying babies. I have delivered most of my babies at 34 weeks except for the twins, which were born at 23 weeks gestation, Weighing just 1 lb. 7 oz. each...one passed away after a 2 day fight while our surviving twin faces numerous disabilities and...

I am nearly 35. I have aquired hydrocephalus from a brain tumor I had when I was 8 years old.I'm looking forward to meeting other bloggers and hope to find some hydro peeps that blog.

My name is Cindy Cole and I am a stay at home mom of 2 sets of boy/ girl twins ages 3.5 and 6.5. 3 out of my 4 children have chiari malformation and 2 of the 3 have had a decompression. My 3rd chiari child is being followed with meds at this point. I also have 3 children with craniosynostosis.

I am a Naturopath and the founder of Laguna Natural Health, a private wellness practice specializing in whole food nutrition and whole body detoxification.***** This information is provided for general educational purposes only and is not intended to constitute- medical advice or counseling - the practice of medicine including psychiatry, psychology, psychotherapy or the provision of health...

I suffer from the rare connective tissue disorder called Ehlers-Danlos Syndrome with many secondary problems including: hypothyroidism, Chiari I malformation, Supraventricular Tachycardia, and Mitral Valve Prolapse. To learn more about me and my journey with chronic illness check my blog at http://sickbunny.blogspot.com

Dr. Cerullo video-blogs about neurology, specifically brain tumors and spine disorders. Dr. Mitchell Sheinkop talks about hip and knee disorders and surgical procedures for correcting them. Dr. Randall Kertz discusses chiropractic and acupuncture-based health care.