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Chiari Malformation Community - People

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monicad1974 Patient ExpertFacebook

marshall, North Carolina
I'm sorry it's been so long since I've been on here. I'm 36 now been blogging alot please come check out what I've been doing. I have really been working hard to get the word out about hydro awareness.  Hydro peeps please come find me! I need your support! I found a few online tonight.  


Goshen, Indiana
I am a graphic designer dealing with the combined conditions of Chiari Malformation, Ehlers-Danlos Syndrome and Fibromyalgia. I am on a constant quest for information on how to manage my health conditions. I love sharing info. with others!

ChyvonneB Facebook

Ohio, Ohio
I am currently on disability from my job due to Cervical Dystonia.  In additon, I have Grave's Disease and a few other health issues. I enjoy reading and writing short stories.       

thematrix777 Patient ExpertHealth Maven

North Las Vegas, Nevada
I am disabled with RSD (Reflex Sympathetic Dystrophy) for several years now. It is a relatively unknown neurological condition that effects my entire sympathetic nervous system.  It is chronic, progressive and incurable. In addition, I have neuropathy, several inoperable back issues and other health problems I deal with on a daily basis. Goals I am Working On:   Goal #1: I am...

Jennifer L.

San Mateo, California
I am a community advocate here (along with Homer) at Wellsphere :) Both of us are here to help you! Feel free to ask for help or give suggestions on how this site can be improved! A little bit about myself...I attend Cal state east Bay and I am an intercollegiate soccer player majoring in Business. I love sports and I love meeting new people!

Cole Twins

Appleton, Wisconsin
My name is Cindy Cole and I am a stay at home mom of 2 sets of boy/ girl twins ages 3.5 and 6.5. 3 out of my 4 children have chiari malformation and 2 of the 3 have had a decompression. My 3rd chiari child is being followed with meds at this point. I also have 3 children with craniosynostosis.
Communities: Chiari Malformation

Dr Larry

Dublin, California
Dr. Lawrence Callaway graduated Summa Cum Laude, with highest honors, from Life Chiropractic College West, earning him the Valedictorian award. In his pursuit of chiropractic excellence he has acquired nearly 300 additional hours of post-graduate training in neurology and Upper Cervical Specific Chiropractic. Dr. Callaway has been certified by the Titleist Performance Institute as a...


United States
AZ Syringo (SM) & Chiari (CM) Support Group We offer care, friendship & support by touching the lives of everyone affected by Syringomyelia (SM), Chiari (CM) & related disorders. Please join us & share your thoughts, concerns & questions. You are not alone! Blessings, Debbie
Communities: Chiari Malformation

Christine from WI Patient Expert

Green Bay, Wisconsin
About 5 years ago I started having headaches when I would lie down that mysteriously dissapeared when I sat up. An MRI determined I had a neurological disorder called a Chiari Malformation. I tried many different prescription medications that did nothing for my pain before I was referred to a neurosurgeon. Two surgeries later I ended up experiencing the worst pain imaginable, wondering if I...
Communities: Chiari Malformation

NOHC Patient Expert

United States
Dr. Cerullo video-blogs about neurology, specifically brain tumors and spine disorders. Dr. Mitchell Sheinkop talks about hip and knee disorders and surgical procedures for correcting them. Dr. Randall Kertz discusses chiropractic and acupuncture-based health care.