My 16 year old daughter was diagnosed with CM1 on March 26, 2009 and she has been very ill. My biggest worry (although specialist say it is not a worry) its my daughters heart problems with her heart rate and her choking spells. She has developed bradycardia and she is being treated for asthma when she doesn't have it. She has been hospitalized 4 times and has had 5 LPs, she says she feels like she's going blind and it scares her very much. We are waiting for Dr. Oro to give us an appointment and we pray that it is soon. Dr. Oro if you read this please consider our care. I beg you. Here in El Paso Texas there is no hope.