That has been the question on my mind for almost a year since I was diagnosed with syringomyelia and then later chiari 0, cranial settling, occult tethered cord and ?EDS. I've gone back and forth, should I or shouldn't I. I am an extremely private person. I hate complaining and complainers. But what finally swayed me is the abyss in Canada when it comes to knowledge and support for those dealing with these disorders. When I was dx I quickly realized the sad state of affairs up here and I want to be part of the solution. I hope that I can be part of the beginning of better days for Canadians with these issues. We have been silent and ignored for too long......
That has been the question on my mind for almost a year since I was diagnosed with syringomyelia and then later chiari 0, cranial settling, occult tethered cord and ?EDS. I've gone back and forth, should I or shouldn't I. I am an extremely private person. I hate complaining and complainers. But what finally swayed me is the abyss in Canada when it comes to knowledge and support for those dealing with these disorders. When I was dx I quickly realized the sad state of affairs up here and I want to be part of the solution. I hope that I can be part of the beginning of better days for Canadians with these issues. We have been silent and ignored for too long......