This is near and dear to my heart, doing committee work at ASAP. They are a tremendous group, providing major funding and grants to Chiari and Syringomyelia research:
Don White, Co-Founder & Chair Emeritus Passes Away
It is with great sadness that we inform you that Don White, Co-founder and Chair Emeritus of ASAP, passed away on January 02, 2008.
Together with his wife, Barbara, Don founded ASAP in 1988. Frustrated by a lack of information and confusion after Barbara's diagnosis, they vowed to bring awareness to these little known disorders. It was their dream that no person would face a diagnosis of SM or CM alone.
Although Barbara became quadriplegic and succumbed to complications that led to her death in 1991, Don remained committed to their mission. Even while battling cancer, Don's devotion to ASAP was so strong that he continued to regularly attend board meetings.
He once said, "There was no ASAP for Barbara and me, and we were determined to do something about it. We believed then and I still believe now, that ASAP can and does make a difference in the lives of those affected by Chiari and syringomyelia."
ASAP extends our sincere sympathy to the family and friends of Don White. It has been an honor to share in the life and mission of this remarkable man. Because of his efforts, SM and CM are becoming better recognized, and our awareness and understanding of the disorders continues to increase. He has made a profound impact on the lives of many.
As we embark on our 20th year anniversary, the ASAP family is more committed than ever to seeing the organization carry on until the mission is fulfilled and a cure is found.
A memorial fund in Don's name has been established. Donations to this fund may be made to ASAP on-line or by mail: