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Ehlers-Danlos Intervention

Posted Dec 26 2011 11:49pm
We're watching the last few minutes of Intervention, and we are all floored by this woman blaming Ehlers-Danlos for her problems. When it came time for the intervention and the direction of the Ehlers-Danlos National Foundation came to participate and told her family that EDS had nothing to do with her behavior, DH and I were nearly shouting out cheers of support. During the show we were so concerned that it was going to be yet another show bringing attention to EDS but in an entirely incorrect manner. There is no one better to have at the intervention than the EDNF Director and I am SO thrilled the show sought him out. I hope she will be ok. She clearly has some serious mental issues.

Christmas was quiet around here. We're doing the best we can, one day at a time. Still wishing there was a way to get out of here. It would be great to go somewhere we could enjoy the weather and other things such as where C could be in Boy Scouts again (they started meeting in an accessible location here so we had to stop going; I was told if they moved they'd let me know so we could return). So C has missed a couple years of Scouts because of that, which is upsetting because there are very few non-physical extracurricular activities available thus he's out of luck. He basically has had to sit back and watch M run around and have fun. How do you explain to a 10 year old he always has to stay behind while his little sister can do near anything? What happened to the goal of teaching that having a disability does not mean you CAN'T do just means you have to find a DIFFERENT way to do it! It gets hard to keep up with that mindset when some people seem set to squash and beat you into the ground time after time, but I hope we can show C that anything is possible, that he can do whatever he sets his mind to, even if he just needs to go about it in his own unique way.
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