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Conquer Chiari ~

Posted Sep 15 2012 4:08pm

Each year I put off blogging about the walk ~ you see ~ fundraising is not really in my wheel house ~ but how can I give you the chance to donate and support the quest to find a cure and boost awareness for Chiari Malformation if you don't know about it? Click on the link below if you would like to sponsor me and donate to help Conquer Chiari
Next Saturday, September 22nd is the annual Conquer Chiari Walk Across America.  

 "The Conquer Chiari Walk Across America is an annual fundraising and awareness event comprised of a series of local walks held on the same day. In 2011, the event was held at 47 different locations, involved more than 5,800 participants, and raised over $405,000. We are proud to say that 83% of the money raised will be used directly to fund research projects and that only 17% was required for overhead and expenses. This year the walk will be held on September 22nd, and it is our goal to raise at least $450,000 for research "
 
Zipperhead 2008
Just last month my youngest daughter had an appointment with a neurosurgeon so that we can get her in an annual cycle to keep an eye on her brain tail. I am consumed with guilt for passing along Chiari to her and pray that a cure is found before the day comes when she might need surgery. Chiari has robbed me physically, emotionally and spiritually; I hope that through research they will find a cure some day soon.

Until that day ~ I have vowed to never give up living ~ pushing forward ~ experiencing as much of life as I possibly can. In the famous words of Morgan Freeman,

Get busy living or get busy dying!


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