This year on September 20th is the first ever Conquer Chiari Walk Across America. I am going to participate in the walk along with my family and other chiarians in the area. I am looking forward to meeting some friends and sharing stories with others on how chiari effects our lives. My hope is one day to find a cure ~ but until then we can raise chiari awareness and raise money to support research for a cure. The NY state governor has officially made September 2008 Chiari Awareness Month! If you are interested in joining us on 9/20/08 ~ just leave me a comment and I can send u the details
OK ~ I admit it ~ I totally hate asking for support, it's just my nature, but if you feel like sponsoring me, you can click on this link ~ to so so. The money is going towards a life changing cause! You know those neat "Stand Up For Cancer" ads that are out there right now ~ my dream is for people to stand up for Chiari. You mention cancer and immediately everyone knows ~ big deal, serious disease, right? Well most of the time when I mention Chiari people squinch up their noses and say, "What's chiari?"
WHAT? A series of coordinated Chiari walks held at the same time across the country. WHERE? It is our goal to have at least one walk in each of the 50 states. Locally: Albany, NY WHEN? Saturday, September 20th, 2008. September has been named Chiari Awareness Month in several states. In conjunction with the Walk Across America we hope to get more states to recognize September as Chiari Awareness Month. WHY? To raise awareness of Chiari; to raise money for vital research; and to get people involved.
My name is Sarah Reynolds i am 23 years old, I was dx with Chiari I 4/4/09. Please let me know as much about the walk, because I am doing whatever I can to raise awareness locally, and If you dont know if there is going to be a walk in Arkansas, let me know what I need to do to start getting something set up. People need to be aware of this to stop people from unnecessarily suffering due to lack of knowledge. Please give me any information that you can about this, I am very eager to help!!! thank you so mcuh