I am so very sad to learn that the founder of WACMA, Chip Vierow, passed away on November 6 th. He had been fighting a courageous battle with a liver disease called nonalcoholic steatohepatitis (which is not associated with Chiari ). He spent the last few weeks in the intensive care unit awaiting a liver transplant, but became too sick before a liver became available for him.
Chip's sister, Ann Hood, wrote to the WACMA Support Group members: "Chip's goal was always to be there for his Chiari family, to be able to support them in any way he could and to continue to 'help more people' as his journey progressed. I know that Chip, in his free spirit form, will continue to love his WACMA family and he will be watching over us and loving us all and be there for us. He made a special request that we do not mourn for him, or spend time in sadness over his passing. He wanted to make sure that we celebrated his life in joy and happiness, recalling the fun and wonderful times and memories while he was on earth. As an angel, he will be with us and would hope that we continue his mission of supporting other Chiarians and to continue creating Chiari awareness in the world. We ask that you keep all of our family in your prayers, especially Sandi as we process our loss." ________________________________________________________ According to the U.S. Government, 19 people die each day waiting for transplants that can't take place because of the shortage of donated organs. For more information on organ and tissue donation, please visit http://organdonor.gov/