Area Support Groups

Here is a list of Chiari Support Groups I have found by researching the Internet. Please email me if you would like to add to this list or would like to change any of the information here.cmschultz@new.rr.com

Alabama
Pam Holmes
112 James St
Ozark AL 36360
334-445-0760
pamjh@charter.net

Arizona
Arizona SyringoChiari Care & Support Group
Founded by Judy Dragiewicz & Shelley Norris ~ Meeting Since 1998
Meets the 3rd Thursday of every quarter from 11:00-1:00 at St. Joseph’s Outpatient Rehab Center, 114 W. Thomas Rd., Phoenix. "Welcome! We offer care, friendship and support by touching the lives of everyone affected by SM/CM and related disorders. Our quarterly meeting includes time to visit and share before a planned speaker. Please join us and share your thoughts, concerns & questions. For additional information email us at azsyringochiari@cox.net or call Debbie (623) 561-6906, Dianna (602) 973-4508."

Chiari and Syringomyelia Network
4231 N. Winfield Scott Plaza #7
Scottsdale AZ 85251
http://www.chiarisn.org/
Monthly support meetings are held on one Saturday per month at Mesa/Scottsdale AZ locations. For more information, please call toll free (866) 661-7607 or (480) 350-7177, or email csinfo@chiarisn.org

California
Lisa Yates
9411 Ottomon Way
Orangevale CA 95662
916-214-3839
destinyclergyservices@yahoo.com

Georgia
The Southeast CM/SM Support Group
Columbus, Georgia
Pam Holmes
Pamjh@charter.net

Illinois
ChicagolandChiari Support
First United Methodist Church
1903 E. Euclid Ave.
Arlington Heights, IL 60004
Carolyn Richardson
Carolyn.J.Richardson@gmail.com

Indiana
Northwest Indiana Support Group
Liberty Bible Church
824 N. Calumet Ave.
Chesterton
Meetings will be held the first Monday of the month at 7pm. The group is for those who suffer with Chiari Malformation and related disorders and for those who care for them. For more information, please contact Nancy: nancybyn@yahoo.com

Iowa
Sheryl Andre
1714 Douglas Ave
Ames IA 50010
515-233-4292
sandre25@mchsi.com

Kansas
Jayne Link
2825 Lower McDowell Creek Rd
Manhattan KS 66502
785-776-5392
fsharp@prodigy.net

Kentucky
Jean Kinsey
307 Hodges Lane
Brooks KY 40109
502-955-6417
mjkinsey@alltel.net

Maryland
Nancy Young
1581 Charleston Dr Ct L
Edgewood MD 21040
410-538-4521

Michigan
Upper Michigan Chiari Malformation Support Group
Meets the second Monday of each month from 7-9 p.m. at the Dickinson County Memorial Hospital, 1721 S. Stephenson Ave., Iron Mountain MI. For more information, please contact Becky Harms at: mbdaharms@norwaymi.com

Cindy Dellamater
10299 Oak Rd
Otisville MI 48463
810-631-6775
Hogan810@cs.com

Missouri
Paul Bales
4315 Ellenwood
St Louis MO 63116
314-351-3122
PBSLMO@hotmail.com

Sheila Rainey
23729 Highway 98
Boonville MO 65233

New Jersey
The South Jersey Chiari Awareness Initiative/Support Group
Meetings are held every 2nd Wednesday of the month. For more information, contact: Christine Marchesano at mailto:Chiari@marchesano.%20org or call 609-812-0515.

New Mexico
Chiari People of New Mexico
1050 South Bosque Loop
Bosque Farms, NM 87068
505-489-4696
Joleen Baughman
bjtlbaughman@aol.com

New York
Oneida County Area
Margaret (Peg) Curtacci
9029 E Boak Rd
Holland Patent NY 13354
315-865-7498
pegcurtacci@excite.com

Northeast Chiari Friends
Meets in: Kingston, NY, East Greenbush /Albany, NY, Pittsfield, MA, and Canaan, CT. For more information, please contact: churchill@fairpoint.net or northeastchiarisupport@hotmail.com

Ohio
Ray D'Alonzo
8700 Mason-Montgomery Rd
Mason OH 45040
513-622-1977
dalonzo.rp@pg.com

Karen McCann
1365 Bellefontaine Ave
Marion OH 43302-7011
740-383-4363
klmpsm@aol.com

Ohio Parents with Children with CM/SM Support Group
217 Erie Street
So. Amherst OH 44001
440-986-2040
Sherri Ketchesin
ketch16@yahoo.com

Oregon
Aaron John
Portland OR 97201
Email: ajfabb-groups@yahoo.com
web site http://smnw.selfip.org/

Pennsylvania
Chiari & Syringomyelia Support of the Greater Lehigh Valley
We meet at the Banko Bldg., Lehigh Valley Hospital/ Muhlenberg campus in Bethlehem, PA on the first Sunday of every month, 2:00 - 4:00 p.m. For more information, please contact: Denise Siegfried, greythndz@yahoo.com, (610) 838-9768

Marilyn Kilbourn
108 Moyallen St
Wilkes Barre PA 18702
570-675-1835


The Children's Clinic of Wyomissing
Wyomissing, PA 19610
mruth@chiaripeopleofpa.com
Renee Tobias and Melissa Ruth
610-413-3259

Tennessee
Stephanie White
820 Roy Donegan Rd
Dickson TN 37055
615-740-0202

Texas
Susie Brasseal
133 Rio Azul
Sequin TX 78155
830-560-1145
sbrasseal@aol.com
or Texas4ASAP@aol.com

Washington
Syringomyelia Northwest Support Group
Edmonds, WA
Michele McGraw
michelelm@verizon.net
425-742-0982

Wisconsin
Green Bay Area Support Group
920-497-2959
Christine Schultz
cmschultz@new.rr.com

Ryea Burns
Wisconsin support group meetings on the first Saturday of every month from 2-4 at the Watertown Memorial Hospital, Conference Room 125, Hospital Drive, Watertown, WI.
She is also working on coordinating meetings for people in the Madison area. Please contact Ryea if you are interested or need more information: ceilingtofloorandmore@yahoo.com