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And now...a message from my brainstem

Posted Aug 24 2008 1:44pm



I've had daily nausea for about 6 months and I was always aware that things could be much worse.....and now they are..... For the last 3 or 4 days I feel like I am about to gag at any moment. It is constant but this sensation is made much worse by moving around a lot or by laying down with my pillow not just right. At times I really have to focus on NOT gagging b/c it feels like if I start I won't be able to stop. Along with this gagging sensation comes this INTENSE throat pain. Not like a sore throat but this PAIN in my throat. As gross as this sounds I also keep having stomach contents just suddenly slip up into my mouth. I know, it's gross....there is no heaving or warning it's just suddenly there.



The nausea I have had for 6 months is absolutely neurolgic in origin. It just feels completely different from any kind of GI nausea. In the same way this throat pain also feels neurologic in origin too. Difficult to explain why I feel that it is but I am sure that it is.



The Zofran really does not seem to have much effect on this gagging feeling. The only thing that seems to help ease it is wearing my collar. I still only have a soft collar. I have been referred to an orthotist to get an Aspen fitted but I don't have an appointment yet. I guess I need to go but my family doctor again and see if she can speed it up. Wearing my collar doesn't fully take it away but it does help.



I just need to get rid of the embarrassment of wearing it!!! It is so stupid that I feel like this but I do. I hate all the looks I get when I go out with the collar on. I know many of you reading this have experienced this and worse...I thinking of those of you that have been in CTO jackets.....and it's something I'll just have to get used to I guess.



I'm thinking this is all brainstem irritation. Nausea, heart arrhthymias, swallowing, gagging, sleep apnea....all the symptoms I have been troubled with lately all originate from the same place. I think my brainstem is really under attack either from compression due to cranial settling or traction from the tethered cord. I really hope that these troubling symptoms will be enough to get my NS attention. I have my appointment on June 24th. Maybe it is good all this is happening right before I see him. He can't possibly ignore all that....can he?

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