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CFMama

New Jersey 07419
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the... Full Bio
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Our Family {Autumn 2012} by CFMama Posted in: Blog Posts in Cystic Fibrosis Today quite a long day for us.  My husband used one of his personal days and we drove to have our family photos taken by my good friend Deborah, fellow photographer, at Re ... Read on »
I wish he would just eat by CFMama Posted in: Blog Posts in Cystic Fibrosis During the most recent hospital admission, nurses were tracking Nathan’s calories and recording everything he ate. I would order his meals, filling his tray with high ... Read on »
Last Day by CFMama Posted in: Blog Posts in Cystic Fibrosis We arrived in Myrtle Beach midday Monday and left Wednesday evening. These photos are from our final day on vacation. The photos are going to have to speak for themse ... Read on »
Where is the time going? by CFMama Posted in: Blog Posts in Cystic Fibrosis When did my baby turn into a big 2 year old girl. Read on »
Mixed emotions by CFMama Posted in: Blog Posts in Cystic Fibrosis Having mixed emotions looking through the rest of our {very short} vacation photos. This one makes me smile – Nathan makes the most of everything, he had a blast swimm ... Read on »
Discharged and home by CFMama Posted in: Blog Posts in Cystic Fibrosis This really happened quick, one moment Nathan was anticipated to be discharged after two weeks total IV antibiotics and the next moment all IVs had ceased and we were look ... Read on »
Hospital Day 7 by CFMama Posted in: Blog Posts in Cystic Fibrosis I’m not sure if I would consider today day 6 or 7. Last Wednesday we were in the emergency room in South Carolina. He had one dose of two different antibiotics via I ... Read on »
Breaking Out by CFMama Posted in: Blog Posts in Cystic Fibrosis No, we are not discharged and have been told Nathan will be here for two weeks but Nathan has big plans. I don’t know how long he has been scheming but he told the nur ... Read on »
An empty bed by CFMama Posted in: Blog Posts in Cystic Fibrosis I came home from the hospital these evening to get some rest and take a bath, get changed, maybe go for a jog in the morning to blow off steam and pack what I need fo ... Read on »
Out of PICU by CFMama Posted in: Blog Posts in Cystic Fibrosis This first photo was taken in Myrtle beach shortly before we rushed Nathan to the emergency room. Yesterday, was Nathan’s first a last full day in the PICU. I a ... Read on »
Hospital in NJ by CFMama Posted in: Blog Posts in Cystic Fibrosis So much has transpired since yesterday.  At this point I am functioning on very little sleep, maybe 2-3 hours.  I have been writing short updates on facebook throughout th ... Read on »
Hospital in SC by CFMama Posted in: Blog Posts in Cystic Fibrosis Just an update for family and friends: I don’t have cellular reception but i do have wireless. we are in the emergency room in South Carolina. The orders were to admit Na ... Read on »
Myrtle Beach {Day 1} by CFMama Posted in: Blog Posts in Cystic Fibrosis We left New Jersey at 9 pm Sunday night and between me and my dad we drove through the night and arrived at our hotel at 10:15 am Monday morning.  The kids both slept until ... Read on »
Nathan’s 4th Birthday at McDonald’s by CFMama Posted in: Blog Posts in Cystic Fibrosis A slideshow seemed like the only option for showing how much fun the birthday boy had at his McDonald’s Party. No words needed really, the joy is evident on his face! For ... Read on »
Blue Moon by CFMama Posted in: Blog Posts in Cystic Fibrosis While driving into our development this evening I noticed an enormous full moon staring me right in the face. We weren’t even in our driveway when I told Jay I had to run ... Read on »
“Happy Birthday to Nathan” by CFMama Posted in: Blog Posts in Cystic Fibrosis Just a grandiose version of “Happy Birthday to You” for a very grande little boy.  Major props to the family for stalling while I reloaded memory card.  There is no time l ... Read on »
An Apple {Cozy} for Teacher by CFMama Posted in: Blog Posts in Cystic Fibrosis Friday was Nathan’s preschool teacher’s last day. Since Nathan loves apples and often brings a bag of apples for his preschool snack to share we, or I rather, figured an ... Read on »
My baby is almost 4 by CFMama Posted in: Blog Posts in Cystic Fibrosis Nathan is turning 4 years old on Saturday. I can NOT believe it, not even one teeny little bit. These past two weeks have been a whirlwind of photo shoots, I LOVE it! ... Read on »
DIY Rugby Stripe Curtains & Galvanized Curtain Rods by CFMama Posted in: Blog Posts in Cystic Fibrosis Nathan’s nursery is slowly turning into a big boy bedroom. The first changes occurred long ago when his crib turned into a toddler bed and then his toddler bed turned into ... Read on »
Nathan made me breakfast by CFMama Posted in: Blog Posts in Cystic Fibrosis He made me a donut, a grape, a chunk of cheese, a pretzel, and a chicken nugget. Can you tell which one is which? Read on »