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CFMama

New Jersey 07419
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the... Full Bio
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On our own by CFMama Posted in: Blog Posts in Cystic Fibrosis I must admit, I was terrified at the end of the day yesterday. We have Nathan to feed all weekend long, all by ourselves. Will I remember the rules? Will he comply? ... Read on »
All about daddy by CFMama Posted in: Blog Posts in Cystic Fibrosis Today was all about training daddy to feed Nathan. I need backup and support over the weekend so I am so happy Jay took today off. I fed Nathan his first meal, sm ... Read on »
My first feed by CFMama Posted in: Blog Posts in Cystic Fibrosis I’ve never been so nervous to feed a child puréed food before. I watched two feedings this morning. The first consisting of berry smoothie and puréed pancake, the sec ... Read on »
Wide open by CFMama Posted in: Blog Posts in Cystic Fibrosis Day 3 – I am seeing improvements with every meal! Meal 1 - Nathan opened mouth for and swallowed all bites of his yogurt berry smoothie. He opened his mouth but s ... Read on »
Getting ahead of myself, again… by CFMama Posted in: Blog Posts in Cystic Fibrosis First I’ll do a quick recap of day two feeding program and the progress Nathan has made. Meal 1 consisted of a strawberry yogurt smoothie. It was presented the same w ... Read on »
Day 1 – Feeding and Swallowing by CFMama Posted in: Blog Posts in Cystic Fibrosis Early morning: I had to wake Nathan up, as anticipated. Whenever we have someplace to be they always want to sleep. His exact words were “people are supposed to be sl ... Read on »
Feeding and Swallowing Day Treatment Program Begins Tomorrow by CFMama Posted in: Blog Posts in Cystic Fibrosis On Tuesday, at our follow up appointment at the feeding and swallowing center, the doctor wanted Nathan to begin the feeding program. The earliest opening was at the end ... Read on »
How will this all work out by CFMama Posted in: Blog Posts in Cystic Fibrosis I’m scared about this day program. I already have trouble fitting myself into the daily equation. How will I survive however long this program is going to last? I ... Read on »
Feeding and Swallowing – Finally making improvements, perhaps by CFMama Posted in: Blog Posts in Cystic Fibrosis If you asked me how Nathan was doing this morning in the eating department, I would have sighed, “not well”. It’s never going well, and I would still respond that way thi ... Read on »
Orthotics adjustment period by CFMama Posted in: Blog Posts in Cystic Fibrosis Last Wednesday we picked up Nathan’s orthotics and he began wearing them for 1 hour, adding one hour each day. It was rough in the beginning. He complained that it hurt. ... Read on »
Nathan’s Sure Step Orthotics by CFMama Posted in: Blog Posts in Cystic Fibrosis He hates them. He got them two days ago and started by wearing them for one hour, then yesterday he wore them for two hours and today he has to wear them for three hours. ... Read on »
2012 in review and 2013 resolutions by CFMama Posted in: Blog Posts in Cystic Fibrosis I am always intimidated to share my resolutions because I usually want to change something about myself that is not quite up to par. Not only that, sharing also has s ... Read on »
Orthotics are Ready by CFMama Posted in: Blog Posts in Cystic Fibrosis We pick up Nathan’s orthotics at the Feeding and Swallowing Center first thing in the morning. His feet were measured three weeks ago and I got the call saying they were ... Read on »
Christmas Morning 2012 by CFMama Posted in: Blog Posts in Cystic Fibrosis Another image heavy post. Christmas morning in one word: Magical. Read on »
Santa Claus is coming…to town by CFMama Posted in: Blog Posts in Cystic Fibrosis Santa toured our neighborhood courtesy of the township volunteer fire department. I was pumping the kids up for the visit all day and Teagan excitedly declared “Santa Cla ... Read on »
2nd visit to Feeding and Swallowing Center by CFMama Posted in: Blog Posts in Cystic Fibrosis This afternoon is our follow up appointment at the Feeding and Swallowing Clinic. The only changes we made since Nathan’s first visit were daily miralax and 30 mg of ... Read on »
Thanksgiving in Virginia by CFMama Posted in: Blog Posts in Cystic Fibrosis A bit overdue…our Thanksgiving in Virginia with my husband’s family: Read on »
December already by CFMama Posted in: Blog Posts in Cystic Fibrosis I feel like I say this every year but really, December already? With an Autumn packed full of newborns and family photo shoots, we’ve been hustling through the weeks ... Read on »
30 Days of Thanks – Day 14 {Sleep} by CFMama Posted in: Blog Posts in Cystic Fibrosis Uninterrupted sleep may be a thing of the past so today I will be thankful for sleep.  I am thankful for a warm bed to sleep in with clean sheets and blankets.  I am thank ... Read on »