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CFMama

New Jersey 07419
Married my husband Jason, 7/7/2007.  Together we have two children.  Nathan was born August 2008, and was diagnosed with Cystic Fibrosis when he was one month old.  We knew there was a possibilty he would be born with Cystic Fibrosis because we found out we were both carriers of the... Full Bio
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Feeling conflicted by CFMama Posted in: Blog Posts in Cystic Fibrosis …more to come after I process some thoughts. Read on »
My little helpers by CFMama Posted in: Blog Posts in Cystic Fibrosis Teagan always loved helping me clean.  I have many photos and videos of her wiping her high chair tray and other surfaces with wipes since she was around a year old.  Now, ... Read on »
Ready for Spring by CFMama Posted in: Blog Posts in Cystic Fibrosis Spring has still not sprung, and until now we have been very patient. These photos were from March 14th and it was freezing, factoring in windchill I am sure it was in ... Read on »
a laundry routine that works for me, finally by CFMama Posted in: Blog Posts in Cystic Fibrosis I’m so sick of letting my laundry pile up until it transforms into a big cloth monster.  Then all in one day I usually do load after load until it is all “clean”.  It goes ... Read on »
The final appointment by CFMama Posted in: Blog Posts in Cystic Fibrosis This past week was Nathan’s last follow up appointment at the feeding and swallowing center. I found it impossible to continue with the 4 structured meals a day so I’ ... Read on »
Homemade Almond Butter by CFMama Posted in: Blog Posts in Cystic Fibrosis I am having a love affair with everything almond. I’ve been making my own almond milk for a while didn’t start branching out until I decided I needed to do something with ... Read on »
The day when one just wasn’t enough by CFMama Posted in: Blog Posts in Cystic Fibrosis Today was difficult. Lunch was particularly difficult. Saturday morning, we ditched the pull-ups and decided it was time for potty training boot camp. This entail ... Read on »
February Clinic by CFMama Posted in: Blog Posts in Cystic Fibrosis CF clinic days are all day family affairs, normally. Sometimes I bring Teagan with me, only when my dad comes and I have an extra set of hands. Sometimes I leav ... Read on »
Self feeding by CFMama Posted in: Blog Posts in Cystic Fibrosis We’ve been following up with the feeding and swallowing clinic twice a week since graduation. Nothing changed last week – 2.5 oz puree, 1 oz mashed, and .5 oz chewable, 4 ... Read on »
Normalcy by CFMama Posted in: Blog Posts in Cystic Fibrosis I am having the hardest time accepting the fact that every single aspect of our lives are impacted by cystic fibrosis.  Normalcy is hard to come by and there are only so m ... Read on »
Some days… by CFMama Posted in: Blog Posts in Cystic Fibrosis Some days you just need to drink a bottle of champagne for dinner and call it a day. Today was that day. All in all, it was a great day. I found many reasons to smi ... Read on »
All my time by CFMama Posted in: Blog Posts in Cystic Fibrosis …is spent shopping for food, preparing food, and feeding/medicating Nathan. I wanted so much to take the kids outside to make a snowman today but I just finished Natha ... Read on »
Best Friends by CFMama Posted in: Blog Posts in Cystic Fibrosis Nathan’s best friend, Ayden, has seasonal asthma and is currently doing nebs just like Nathan. At first he was so proud to be just like his buddy, but now he hates it ... Read on »
One more day by CFMama Posted in: Blog Posts in Cystic Fibrosis All these photos are from yesterday, our last day in isolation. We spent a good portion of the day drawing “Nathan pictures” on the thank you cards. I wrote each p ... Read on »
You Have to Take the Good with the Bad by CFMama Posted in: Blog Posts in Cystic Fibrosis “You have to take the good with the bad, smile when you’re sad, love what you’ve got and remember what you had… Always forgive but never forget, learn from your mistakes ... Read on »
It’s too late by CFMama Posted in: Blog Posts in Cystic Fibrosis It’s really just too late for me to blog, let alone function, so this will be short and sweet. In the evenings and weekends, we have still been feeding him 2 ounces p ... Read on »
Weekend 2 Day Treatment by CFMama Posted in: Blog Posts in Cystic Fibrosis I haven’t felt much like writing but figured I’d at least give a quick update on Nathan’s progress. The team increased the volume of his feeds to 2 ounces purée and ... Read on »
Mashables by CFMama Posted in: Blog Posts in Cystic Fibrosis Miss A tried reintroducing chewables this morning along with the purées. He expelled the diced strawberries as soon as the piece landed on his tongue. New purées in ... Read on »
10 ounces today by CFMama Posted in: Blog Posts in Cystic Fibrosis Nothing lengthy today, just announcing that I’m so proud of my boy for eating 10 ounces of solid (well puréed) food in addition to his usual 24 ounces of pediasure 1.5! ... Read on »
We survived by CFMama Posted in: Blog Posts in Cystic Fibrosis I was so relieved after Nathan’s fourth feed today, meaning we survived an entire weekend of feeding him on our own. Today menu was just like yesterday’s because we h ... Read on »