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My doctor refused to test for Celiac. Now what?

Posted by Nancy

I do not have an medical diagnosis of Celiac. I asked my family practice doctor about tests and he said it was impossible for me to have Celiac. I was infertile and diagnosed as hypoglycemic when I was in my thirties. More recently, I was diagnosed as mildly hypothyroid, with osteopenia, and IBS. I am 57.  I live in a rural area and there are not many doctors. I was desperate, so I went ahead with the gluten free diet on my own. It has been about 18 months and most of the gastrointestinal symptoms have disappeared. I am still very tired and listless. I am very careful when I eat at home and scrub my hands and fingernails after feeding my dogs. I have a couple of restaurants within 60 miles that I usually trust but had problems after going to one last week.
Answers (3)
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    Nancy -- well, you certainly have a lot of red flags for celiac, including the infertility, the low functioning thyroid, the osteopenia, and probably the hypoglycemia. It is difficult to test for antibodies after being on a gluten-free diet for as long as you have. It's a shame that your doctor refused to test you. You might want to seek another opinion. There are some other testing options, but for now, your fatigue could be a result of a low functioning thyroid. I would also talk with the manager of the restaurant you go to to make sure the kitchen staff is aware of how little gluten contamination it takes to make someone with celiac disease sick. Flour dust in the air, using a spoon to stir something after it's been in pasta water, touching a piece of bread and then handling your food and so on. It takes next to nothing to trigger a response in susceptible people.

Make sure your food choices are nutrient-dense foods that will help boost your immune system and supply you with the building blocks you need to get strong and healthy. Fresh, whole foods are the best. Skip the sugar-laden packaged foods and go for vegetables, fruits, gluten-free whole grains like quinoa or amaranth, beans, lentils, and so on. 

Good luck!

HI Nancy,

 Sometimes doctors just don't get it...the first thing you should do is try to find another doctor in your area to test you. Be sure to tell your doctor about all of the symptoms. Also, be sure to bring information about celiac disease with you to the doctor. You will want to provide as much detail about the disease as possible to make sure they see the need to test you.  If all else fails, there is a Home Test Kit available from Canada. The test is approved in Europe and Canada and is going through FDA approvals right now in the USA. Here is a link to the website where you can order it:

All the best! 

Oh my! I would definitely go to another doctor and request a test for celiac. However, for it to be valid, you will need to be on a gluten diet. 

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