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Celiac Disease: Share Your Health Care Story

Posted Feb 19 2009 3:51pm

Do you have a health care horror story? Has your health insurance failed you? Did your insurance company deny coverage of a celiac blood test or endoscopy? Have you gone to the pharmacy to pick up a prescription medication only to find out that it isn’t covered and going to cost you a fortune? Would you like to see a dietitian for nutritional counseling but your insurance won’t cover it and it is too expensive to pay for out of pocket? If you answered yes to any of these questions, I need your help!

As part of the national health care reform team, I’m looking to show lawmakers and the media how patients with chronic conditions like celiac disease are in desperate need of changes to the health care system to help them better manage their health on a daily basis.

I’m working with Health Care for America Now, a national coalition made up of more than 700 HCAN logo short-cropped organizations representing nearly 30 million people. The goal is to win comprehensive quality, affordable health care in 2009.

So, if you have a story, please share it. Your story will put an incredible human face on this very complex public policy issue and truly help America move towards a health care system that works around the clock for people with chronic diseases.

To share your story, please download the Share Your Story Template. Fill in as much of the information as you are comfortable with and then email the responses back to me at 

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