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Catrina Johnson

Pike County, Kentucky
My name is Catrina, I am a stay at home mom to 3 children. My days consist of taking care of my children, but online where everyone has the ability to connect and share information I have the obligation to spread the word of a rare disorder called Hirschsprungs Disease. My son who is now 3 has... Full Bio
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Inflammatory Bowel Disease Information by Catrina Johnson 1 Comment Posted in: General Discussion in Children with digestive disorders Inflammatory bowel disease or IBD includes Crohn's disease and ulcerative colitis, which causes inflammation in the digestive tract. The causes of IBD are unknown. Inflammat ... Read on »
Introduce yourself and your child here by Catrina Johnson Posted in: General Discussion in Moms to special needs Children Feel free to tell us a bit about yourself and your child. With this topic hopefully once members start joining we can start to offer support and get to know each other...  ... Read on »
Is it possible for a child to have Hirschsprung's Disease along with Inflammatory Bowel Disease? by Catrina Johnson Posted in: Questions & Answers in Digestive Health My son was born with congenital aganglionic megacolon, also known as Hirschsprung's Disease. He has had corrective surgery to have that part of the colon removed. He now only ... Read on »
Is it possible for a child to have Hirschsprung's Disease along with Inflammatory Bowel Disease? by Catrina Johnson 1 Comment Posted in: Questions & Answers in Digestive Health My son was born with congenital aganglionic megacolon, also known as Hirschsprung's Disease. He has had corrective surgery to have that part of the colon removed. He now only ... Read on »
Hirschsprung's Disease by Catrina Johnson Posted in: Blog Posts in Children's Health Hirschsprung's disease occurs when some of the nerve cells that are normally present in the wall of the intestine do not form properly during fetal development. During di ... Read on »
So Far~So good by Catrina Johnson Posted in: Blog Posts in Children's Health As of today, coming up on the ending of July and going on almost 2 months since Dylan's last episode of stomach bug symtpoms...just praying he continues to do well. Dy ... Read on »
I just don't get it by Catrina Johnson Posted in: Blog Posts in Children's Health Well for those of you who know me and my son, knows that Dylan is constantly sick with a stomach virus....The symptoms come and go sometimes as often as every few weeks. I kno ... Read on »
~Thanks for your comments~ by Catrina Johnson Posted in: Blog Posts in Children's Health Just wanted to make a post to thank everyone who has stopped by to read our Hirschsprungs journey. My reason of making this blog is for one to make HD more known about, to rai ... Read on »
A New Journey Begins-POTTY TIME by Catrina Johnson Posted in: Blog Posts in Children's Health We made the trip again to Cincinnati to see Dr. Levitt, this time for a check up. Dylan had the dreaded rectal exam but with the wonderful news that there is no scar tissue, w ... Read on »
? Happy 3rd Birthday to Dylan ? by Catrina Johnson Posted in: Blog Posts in Children's Health Today is Dylan's 3rd Birthday, of course his birthday is a day to celebrate. I can't help but to look back 3 years ago and remember my baby being born with such a rare disorde ... Read on »
Children who suffer by Catrina Johnson Posted in: Blog Posts in Children's Health There are so many sick kids in the world, it breaks my heart to see this. Dylan has suffered on and off since birth with numerous illnesses and aches and pains. Its hard to wa ... Read on »
Hanging in there...waiting for some type of change by Catrina Johnson Posted in: Blog Posts in Children's Health So we are aproaching Dylans 3rd birthday, it has been a long journey with Hirschsprungs that Im sure is not even close to coming to an end anytime soon. Dylan has been doi ... Read on »
Post op Check up-things seem to be ok! by Catrina Johnson Posted in: Blog Posts in Children's Health Dylan went for a check up Feb. 17th with his original surgeon Dr. Beals. We had been scheduled to go back to Cincinnati to see Dr. Levitt but had to cancel due to th ... Read on »
Re-do Pull-thru (Jan. 6, 2009) by Catrina Johnson Posted in: Blog Posts in Children's Health Our new year began with heading out to Cincinnati for Dylan's re-do pull-thru surgery. Everything went very well, there was no complications with bowel prep, and after sur ... Read on »
Update: Dylan's hanging in there, waiting on surgery by Catrina Johnson Posted in: Blog Posts in Children's Health Yesterday was a week since we came home from the hospital, the irrigations are torture but are helping Dylan so much. He is back to his normal weight of 36 lbs (he was a littl ... Read on »
It's official-Biopsy shows Dylan still has Hirschsprungs Disease by Catrina Johnson Posted in: Blog Posts in Children's Health That dreadful anticipated day has FINALLY arrived. Ive been emailing back and forth with the nurse of Marc Levitt's office, keeping in touch every day to see if the results of ... Read on »
Cincinnati Children's Hospital-seeing the specialists in colon disorders by Catrina Johnson Posted in: Blog Posts in Children's Health Upon arriving at Cincinnati Children's Hospital from the other hospital in Lexington, I felt a great deal of relief because I knew Dylan was going to be in the b ... Read on »
More surgery-hospitalized due to obstruction by Catrina Johnson Posted in: Blog Posts in Children's Health This post will put us up to date, thanks to you that have bared with me to get all this typed up. I know the below posts were long, but wanted to share Dylan's ... Read on »
The start of something else, yet another problem by Catrina Johnson Posted in: Blog Posts in Children's Health Dylan conquered his first surgery like a pro, he did have some problems a few months afterwards with entercolitis and scar tissue. After several months of chec ... Read on »
Part 2 of Dylan's Journey with Hirschsprung's Disease-The corrective surgery by Catrina Johnson Posted in: Blog Posts in Children's Health After finally getting the diagnosis of Hirschsprung's Disease, the next step for Dylan was a corrective surgery called a pull ... Read on »