Health knowledge made personal

Catherine

I'm Catherine, the author of Reuben Jack & Callum Andreas. Reuben was born with CHARGE Syndrome, a rare genetic disorder affecting 1 in 10,000 births. This is the story of the challenges I as their mother faced in conceiving after 6 years of infertility, surgery and IVF, the miraculous story... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Spring Blooms III by Catherine Posted in: Blog Posts in Children's Health And only had eyes for Callum ( ... Read on »
Out by Catherine Posted in: Blog Posts in Children's Health A little trach tie covers the stoma allowing air to aid healing. The stoma will close to a pinprick in a couple of days. It is so utterly strange to se ... Read on »
Callum in biggles hat by Catherine Posted in: Blog Posts in Children's Health Click for little slideshow Read on »
Callum in biggles hat by Catherine Posted in: Blog Posts in Children's Health Click for little slideshow Read on »
Sleep study results by Catherine Posted in: Blog Posts in Children's Health "The study shows an AHI (apnea index) of 3.6 (normal is less than 1.5); oxygen as low as 84% (would like to see above 91%) and CO2 is 52 torr (would like 51 or less). ... Read on »
Transition by Catherine Posted in: Blog Posts in Children's Health On the road to transition, more of which I'll write about soon, but I wanted to note his lead teacher's comments which are heartwarming to read, verbatim, prior to his psyc ... Read on »
Radio Flyer Wagon by Catherine Posted in: Blog Posts in Children's Health click for  Radio Flyer Wagon slideshow After 5 days of being stuck inside, sick of being sick with a heavy cold, I finally ventured out today, first t ... Read on »
The toilet paper diaries by Catherine Posted in: Blog Posts in Children's Health Hi firstly I must apologise for being so behind in Blogland reading other journals. Many reasons including spending a lot of time developing my techniques for m ... Read on »
Trach tie change by Catherine Posted in: Blog Posts in Children's Health How easily Reuben takes the nightly routine of the trach tie change. With bath time over, the soap suds washed away, lavender oil smoothed over h ... Read on »
Playa Vista Park by Catherine Posted in: Blog Posts in Children's Health "Hound dog" New shoes on with orthotics to help his balance and improve his arches I so love our times at the Pl ... Read on »
Superbowl Sunday by Catherine Posted in: Blog Posts in Children's Health I think the attention to photography on this bright, sunny Sunday afternoon in February, gives a little ... Read on »
Valentines by Catherine Posted in: Blog Posts in Children's Health Waiting for my Valentine ... Read on »
Don't text and drive - ASL poem by Catherine Posted in: Blog Posts in Children's Health Thanks to Gwen our DHoH teacher at LAUSD for the link. This video uses ASL clarifiers, body language to express the message. Pretty powerful stuff and a messa ... Read on »
Destruction by Catherine Posted in: Blog Posts in Children's Health 27 stumps I've been haunted the last few days regarding the new development at UCLA. In life, we pick our battles to fight and this is one of mine. In ... Read on »
Wash hands by Catherine Posted in: Blog Posts in Children's Health Reuben spontaneously signs "camera", Callum signs "thank you", and somehow I managed to catch it! The two little hands over the sink are just too s ... Read on »