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“Official” is a great feeling by Carrie Ostrea Posted in: Blog Posts in Children's Health Our "official" incorporation filing The Little Miss Hannah Foundation  is officially in business. I can’t tell you how AMAZING this feels.  Hannah’s legacy is ... Read on »
Perchance to Dream… by Carrie Ostrea Posted in: Blog Posts in Children's Health Such an amazing smile I belong to this grieving mothers board, and there was a topic about moms who have had dreams about their children they have lost.   So many mo ... Read on »
Price of Freedom by Carrie Ostrea Posted in: Blog Posts in Children's Health We have had a crazy nonstop weekend.  Started first thing Friday and didn’t stop until about 10 pm last night when we got home and rushed the kids off to bed for school.   ... Read on »
Hannah is playing by Carrie Ostrea Posted in: Blog Posts in Children's Health Someone once told me that the children in Heaven play on these streaks because it is one of their only connections to our world. “Hannah is out playing”. When Abb ... Read on »
Brand New World by Carrie Ostrea Posted in: Blog Posts in Children's Health If you had told me four years ago that I would be knee deep in a world where children fight like warriors, parents fight like superheroes, and where my heart and passion w ... Read on »
To delete or not to delete by Carrie Ostrea Posted in: Blog Posts in Children's Health I was going through my videos of Hannah on youtube, and I came across the last 4 videos I uploaded. They are videos that I made during Hannah’s last few weeks when she ... Read on »
What to do from here by Carrie Ostrea Posted in: Blog Posts in Children's Health I’m finding it harder and harder to come up with things to talk about in my blog. For over 3 years, my focus was on fighting to give Hannah the best quality of life. ... Read on »
Little Miss Hannah’s Legacy Brings Awareness to Rare Disease by Carrie Ostrea Posted in: Blog Posts in Children's Health written by Mina Frannea , Today’s Mama Each year on Rare Disease Day, participants from around the world advocate for those who are affected by rare diseases, bringin ... Read on »
You can rest now, Olivia by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah passed away three months ago today. Woke up this morning to a text that Olivia , one of Hannah’s soul-sisters with Gaucher’s type 2, passed away.    She had jus ... Read on »
In search of my missing piece by Carrie Ostrea Posted in: Blog Posts in Children's Health My Valentine's gift from my in-laws. It sits on the wall next to my desk so I can look at it all the time. I saw this news piece tonight about a teenager who passed ... Read on »
Speak, Crash, and Burn…and Breakdown by Carrie Ostrea Posted in: Blog Posts in Children's Health Rough, rough 36 hours or so. I went to do the teacher’s meeting, and it was nice to see some familiar faces there, especially Ethan and Abby’s old teachers.   But I ju ... Read on »
Second Annual World Rare Disease Day School Event by Carrie Ostrea Posted in: Blog Posts in Children's Health Our family being interviewed last year at Vanderburg's WRDD event. What a difference a year makes. This time last year, we were preparing for Vanderburg Elementa ... Read on »
Building support by Carrie Ostrea Posted in: Blog Posts in Children's Health We are so lucky to have so many wonderful people working with us and sharing their ideas to help build our new nonprofit foundation!   Every single person who “likes” us, ... Read on »
Soundtrack of my heart by Carrie Ostrea Posted in: Blog Posts in Children's Health I look at this picture of Hannah, when she fell asleep on her own those first few hours at the hospice, without meds for the first time in weeks. Her body was just so exha ... Read on »
If only Selena Gomez met Hannah by Carrie Ostrea Posted in: Blog Posts in Children's Health Over the past week, there have been a LOT of search requests coming to my blog looking for a combination of the following keywords:  Hannah with the rare disease that met ... Read on »
“Time to Move on” by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah, August 2011, cuddling with her great-grandmother I went to the parents bereavement support group tonight, and one of the topics that was brought up for discu ... Read on »
Hannah won the pool…twice! by Carrie Ostrea Posted in: Blog Posts in Children's Health We went to a superbowl party at a friend’s house today.  It was great to get out and socialize again, and Ethan and Abby had such a good time with the other kids. They ... Read on »
Make-A-Wish, we are eternally grateful! by Carrie Ostrea Posted in: Blog Posts in Children's Health Anyone who knows us knows that our Make-A-Wish to Disney World last April was the best time of our family’s life with Hannah.   I’m disappointed that I never had the chanc ... Read on »
Impossible to sum up by Carrie Ostrea Posted in: Blog Posts in Children's Health Little Miss Hannah Foundation website I have spent a lot of time during the past few weeks on the new Little Miss Hannah Foundation  website.   Talk about a labor ... Read on »