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The Empty Cemetery by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah … her area stripped …. Yesterday I went to visit Hannah at the cemetery.  I still go about once a week (unless there is heavy rain because it gets muddy).   I ... Read on »
Ladybug costume & DNR by Carrie Ostrea Posted in: Blog Posts in Children's Health The only picture I have from Halloween 2009 – and Hannah wasn’t the happiest of campers in it! The kids wanted to break out the Halloween decorations today.   It h ... Read on »
Hannah is making her mark! by Carrie Ostrea Posted in: Blog Posts in Children's Health The Little Miss Hannah Foundation was awarded the  Genzyme Patient Advocacy Leader 2012 Award  for our school-involved World Rare Disease Day program! We were only one o ... Read on »
This time last year …. by Carrie Ostrea Posted in: Blog Posts in Children's Health Good times – March 2010 We are coming up to the one year mark… I’ve always found myself doing the “this time last year with Hannah…” thing.  Trying to remember ... Read on »
Dealing with the Triple A’s by Carrie Ostrea Posted in: Blog Posts in Children's Health Anger – Anxiety – Abandonment. My triple A’s. I’ve been missing Hannah a lot this week.  Some of it is because the kids started back to school, and I keep going ba ... Read on »
Unexpected Pangs of Jealousy by Carrie Ostrea Posted in: Blog Posts in Children's Health Unsure of Mickey at first ~ Who would have known that Mickey would become her favorite? I came across this post written by a mom with a medically fragile child.  ” T ... Read on »
Jumping into the Big Pond by Carrie Ostrea Posted in: Blog Posts in Children's Health Next month, my husband and I are going to the first annual RARE Tribute to Champions of Hope Gala and the patient advocacy meeting they are hosting the next day.  This wil ... Read on »
Bring on the pain by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah may not have been able to eat the candy, but that did not stop her from eating the wrapper with the candy inside! Oct 2010 The kids go back to school in 11  d ... Read on »
Our Rainbows to the Sky Event by Carrie Ostrea Posted in: Blog Posts in Children's Health ( click for event program ) On July 25, 2012, the Little Miss Hannah Foundation launched ourselves into the Las Vegas community with our “Rainbows to the Sky” event ... Read on »
Happy Birthday Hannah by Carrie Ostrea Posted in: Blog Posts in Children's Health Happy birthday, Hannah. I miss your smile, your wiggle, and that adorable little laugh of yours. Most of all, I miss your snuggles, cuddles, and just having you are my arm ... Read on »
Tomorrow’s balloon release by Carrie Ostrea Posted in: Blog Posts in Children's Health July 25th ~ Little Miss Hannah’s Rainbows in the Sky Event If you are unable to make our event on July 25th and would like to have a balloon released with your perso ... Read on »
Hallmark Card for me… by Carrie Ostrea Posted in: Blog Posts in Children's Health I found this online.  Not sure who wrote it, but it brought me to tears… Dear Mr. Hallmark, I am writing to you from heaven, and though it must appear … A rather ... Read on »
Weekend away… by Carrie Ostrea Posted in: Blog Posts in Children's Health View from the house….ahhhhh We went away for a long weekend road trip to get together with some friends.  One of them had a lakehouse in Northern California, which I ... Read on »
Las Vegas Review Journal Article on our family by Carrie Ostrea Posted in: Blog Posts in Children's Health After losing their daughter to rare disease, a Henderson family has created a foundation in her honor Make-A-Wish Disney World Trip, April 2011 – Members of the Ostr ... Read on »
Two weeks and one day…. by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah, 9 months old Two weeks and one day until Hannah should be turning 4. Two weeks and one day until one of the biggest projects of my life . Two weeks a ... Read on »
Have the scales tipped? by Carrie Ostrea Posted in: Blog Posts in Children's Health We had another loss in our Gaucher 2/3 community today.  An adorable little boy with beautiful brown hair and big eyes.  I would look at his pictures often because he shar ... Read on »
Dealing with the nights by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah on Dadd’s lap enjoying the fireworks – July 4, 2011 July 4th is coming up… To me, it marks one year since Hannah was able to enjoy her last holiday with u ... Read on »
Mission and Passion and Help by Carrie Ostrea Posted in: Blog Posts in Children's Health The birth of a legacy – the launch of the Little Miss Hannah Foundation The countdown begins until the launch of our Little Miss Hannah Foundation on July 25th. ... Read on »
Ethan’s 5th grade promotion and speech by Carrie Ostrea Posted in: Blog Posts in Children's Health My handsome boy, now a middle school kid. He was the student speaker for his class, and his speech was absolutely amazing ~ well, from what I heard at the beginning. H ... Read on »
June 7th – TGI Fridays – Will you be there? by Carrie Ostrea Posted in: Blog Posts in Children's Health Check out our donation bin at our local TGI Fridays in Henderson! Help us fill it up! ( be sure to bring the event flyer on June 7 )  Vegas friends, Celebrate ... Read on »