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“Amazing!” by Carrie Ostrea Posted in: Blog Posts in Children's Health That was the term Hannah’s neurologist used when saw what a change Hannah has had in her neurologic issues, chorea movements, and physical demeanor in the two weeks since ... Read on »
“Baby” food steps by Carrie Ostrea Posted in: Blog Posts in Children's Health As I have mentioned before, we removed basically all finger foods and solids from Hannah’s diet.  For the past 6 weeks, she has had nothing but bottled pureed food, milk, ... Read on »
“Finite” by Carrie Ostrea Posted in: Blog Posts in Children's Health Newly found pic of Hannah, 12 months old I received a CD recently of pictures that were taken at Hannah’s first birthday party in Texas. It was so exciting see ... Read on »
“Her 5th birthday” by Carrie Ostrea Posted in: Blog Posts in Children's Health We had a fantastic visit with the developmental pediatrician.  I was incredibly impressed that she had thoroughly researched Gaucher’s disease beforehand and that she aske ... Read on »
“How is she?” by Carrie Ostrea Posted in: Blog Posts in Children's Health We went to the festival at the kids’ school yesterday afternoon.   A mom that I have known since Ethan was in Kindergarten with her daughter (he is in 3rd now) asked m ... Read on »
“I don’t want Hannah to die” by Carrie Ostrea Posted in: Blog Posts in Children's Health Abby has been having some troubles over the past couple of months, both at home and at school.  She has her own medical issues (non life threatening) on top of all this. ... Read on »
“Mommy, Something Is Wrong With Hannah!” by Carrie Ostrea Posted in: Blog Posts in Children's Health I fell asleep soon a couple of hours after we got back from the fantastic fundraiser at the Children’s Specialty Center (more on that later).   Daddy had to take Abby on a ... Read on »
“More harm than good” by Carrie Ostrea Posted in: Blog Posts in Children's Health After last night’s scare, Daddy and I were so concerned about Hannah’s breathing and second-guessing our decision to put her on a vent to help her breathe.  Apparently tha ... Read on »
“Official” is a great feeling by Carrie Ostrea Posted in: Blog Posts in Children's Health Our "official" incorporation filing The Little Miss Hannah Foundation  is officially in business. I can’t tell you how AMAZING this feels.  Hannah’s legacy is ... Read on »
“Time to Move on” by Carrie Ostrea Posted in: Blog Posts in Children's Health Hannah, August 2011, cuddling with her great-grandmother I went to the parents bereavement support group tonight, and one of the topics that was brought up for discu ... Read on »
“Tremendous” by Carrie Ostrea Posted in: Blog Posts in Children's Health I have never hated a word so much in my life.  I never knew I hated this word so much until just two days ago. This was the word Hannah’s neuro used to describe Hannah ... Read on »
*Rush* Neuro appointment by Carrie Ostrea Posted in: Blog Posts in Children's Health Last night, Daddy and I had one of our reality discussions about Hannah that we have to have but just sucks that we have to have.  We have both seen the deterioration in h ... Read on »
10/26, Golf Tournament and Auction, San Jose, CA! by Carrie Ostrea Posted in: Blog Posts in Children's Health Coldwell Banker Residential Brokerage will hold its 13th annual Gregory Austin Macres Memorial Golf Tournament on Oct. 26 at the Palo Alto Hills Golf & Country Club, 3000 Al ... Read on »
2010 ~ A Look Back by Carrie Ostrea Posted in: Blog Posts in Children's Health Twenty minutes until the clock strikes midnight here.  Everyone is asleep, even Daddy.  We had a very quiet but nice evening at home with the kids.  We had BBQ meatballs, ... Read on »
A day of positivity by Carrie Ostrea Posted in: Blog Posts in Children's Health Today was a good day.  A really good day. We started our twice-a-week occupational therapy sessions this afternoon.  It was a really rough start because as soon as Hanna ... Read on »
A Devastating Blow by Carrie Ostrea Posted in: Blog Posts in Children's Health Daddy lost his job today. After four years with the company and only three months in this dream-job positionhe was let go. He is our main source of income plus our insur ... Read on »
A huge (and messy) step forward! by Carrie Ostrea Posted in: Blog Posts in Children's Health I wish this phone pic came in clearer! Hannah has been making such quick and huge strides in terms of her eating issues recently.  Actually, it has been progres ... Read on »
A Mile Begins with the First Step by Carrie Ostrea Posted in: Blog Posts in Children's Health Sitting upright all on her own for almost 3 minutes! We finally got Hannah’s leg braces in on Wednesday late afternoon.   So we took them to physical therapy yesterd ... Read on »
A possible delivery system that crosses the blood-brain barrier!!!! by Carrie Ostrea Posted in: Blog Posts in Children's Health Kyle’s momand I are off to get the researchers’ opinions of this hopeful breakthrough!   University of Iowa scientists use blood-brain barrier as therapy delivery system ... Read on »
A Sigh of Relief by Carrie Ostrea Posted in: Blog Posts in Children's Health We made it. You know how you sometimes don’t want to mention something for fear that you are going to jinx yourself and then it will happen?   That is exactly how ... Read on »