My question to you is well did your fight go?

We have been told that OHIP is suppose to cover any care outside Canada if they cannot provide it here. I am prepared to fight them with all I have, including going to the media if I have too.

Do you have any advice for me?

Hi, our neuro believes our daughter has Chiari O, EDS, Cranial Settling and we know IH. I have shown him the research on Chiari O and he believes us. He has even sent her files to TCI for help, because no neurosurgeon in Canada will touch her. We are going to TCI for the testing as they emailed me and believe she should be seen.  Our plan is to find out they think she needs and then fight for OHIP to cover it. More in next post....

Hi Caroline,

Have you ever heard of Chiari being associated with having Lyme disease? 

Our 17 yr. old daughter sadly had Lyme disease when she was little and she was not medically treated properly for it. Now, years later, I can't help thinking her 7mm chiari is in some way associated with her having the Lyme.

I appreciate any input you, or anyone else, has on this subject.  Our family is new to Chiari but we are learning fast. 

Have a nice day,

KES