Hi! I'm the "Singing Patient." I'm a comedian/ songwriter who happens to have a diagnosis of a chronic illness. I am doing better than most fo the folks I know with this illness, and I attribute it to various forms of alternative medicine, refusing to be a victim, and keeping a sense of...
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Gratitude
by
Carla U.
Posted in: Blog Posts in Lupus
The other day I went to a lupus support group to speak and sing and share, as they say in 12-step, my experience, strength, and hope.
There was one person in the meetin ...
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Food Allergies Part One
by
Carla U.
Posted in: Blog Posts in Lupus
A long time ago, I read a chapter in a big gray booked simply titled "Alternative Medicine."
It's a fantastic book; it has info on all kinds of ailments and their suggest ...
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Eating Out on a Strict Diet
by
Carla U.
Posted in: Blog Posts in Lupus
Someone asked me today how I deal with eating out, with my strict diet. (I'm gluten-free, vegetarian, and also trying to avoid dairy.)
I don't have gluten or dairy (or ...
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The Spoon Theory
by
Carla U.
Posted in: Blog Posts in Lupus
One of the many frustrating things about having lupus, or any chronic illness, is trying to communicate to others what you're going through. When the disease is active, we ...
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Leaky gut
by
Carla U.
Posted in: Blog Posts in Lupus
One of the things that bothered me the most about being diagnosed with lupus (and there were many) was the total lack of answers to the question "why?" Why was my body att ...
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Gum, part 2: chew on this!
by
Carla U.
Posted in: Blog Posts in Lupus
I posted recently about giving up chewing gum a while back because I couldn't find any that didn't have nutrasweet. And nutrasweet, for me, is poison, causing migraines an ...
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Beating back the creeping crud
by
Carla U.
Posted in: Blog Posts in Lupus
Well it's that time of year. The central heat is on, the sinuses are getting dried out and irritated, the cold air is upon us, and the germs are moving in and taking up re ...
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Gum
by
Carla U.
Posted in: Blog Posts in Lupus
My gum-chewing days are essentially over. And while that will probably save me from getting TMJ, I do miss having something to chomp on in place of dessert, or while I'm c ...
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Inflammation
by
Carla U.
Posted in: Blog Posts in Lupus
Inflammation. It is the hallmark of many diseases (perhaps *all* diseases), including lupus.
We have an epidemic of inflammation in this country, and it's killing us. ...
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a breath of not so fresh air
by
Carla U.
Posted in: Blog Posts in Lupus
Hello faithful readers!
Today's topic: fresh air.
I just returned from a music conference where a friend of mine (Angela) is fighting an uphill battle to make people a ...
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Lupus and Diet
by
Carla U.
Posted in: Blog Posts in Lupus
Today I spoke/ sang for a support group at the SLE Foundation in NY City. What a great group of people.
Lots of great energy and ideas bouncing around, and I was heartene ...
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Lupus Research Findings
by
Carla U.
Posted in: Blog Posts in Lupus
Below are highlights of patient-focused research from Hospital for Special Surgery that will be presented at the Annual Scientific Meeting of the American College of Rheum ...
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