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Carla U. Patient Expert

Somerset, New Jersey
Hi! I'm the "Singing Patient." I'm a comedian/ songwriter who happens to have a diagnosis of a chronic illness. I am doing better than most fo the folks I know with this illness, and I attribute it to various forms of alternative medicine, refusing to be a victim, and keeping a sense of... Full Bio
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Guest blogger: Eat to Beat Inflammation and Pain by Carla U. Patient Expert Posted in: Blog Posts in Lupus Eat to Beat Inflammation and Pain Let’s be honest – swollen joints and aching muscles just plain suck. Modern medicine has a host of helpful treatments for the ... Read on »
Gratitude by Carla U. Patient Expert Posted in: Blog Posts in Lupus The other day I went to a lupus support group to speak and sing and share, as they say in 12-step, my experience, strength, and hope. There was one person in the meetin ... Read on »
Food Allergy Part 2: Food Allergies vs. Food Intolerances by Carla U. Patient Expert Posted in: Blog Posts in Lupus What's the difference between food allergy and food intolerance? I'm not an expert, but as near as I can tell from reading and researching this topic, here's the differ ... Read on »
Food Allergies Part One by Carla U. Patient Expert Posted in: Blog Posts in Lupus A long time ago, I read a chapter in a big gray booked simply titled "Alternative Medicine." It's a fantastic book; it has info on all kinds of ailments and their suggest ... Read on »
Eating Out on a Strict Diet by Carla U. Patient Expert Posted in: Blog Posts in Lupus Someone asked me today how I deal with eating out, with my strict diet. (I'm gluten-free, vegetarian, and also trying to avoid dairy.) I don't have gluten or dairy (or ... Read on »
The Spoon Theory by Carla U. Patient Expert Posted in: Blog Posts in Lupus One of the many frustrating things about having lupus, or any chronic illness, is trying to communicate to others what you're going through. When the disease is active, we ... Read on »
Leaky gut by Carla U. Patient Expert Posted in: Blog Posts in Lupus One of the things that bothered me the most about being diagnosed with lupus (and there were many) was the total lack of answers to the question "why?" Why was my body att ... Read on »
The Many virtues of Junk Food by Carla U. Patient Expert Posted in: Blog Posts in Lupus Junk food: tasty addictive cheap convenient lasts forever on a shelf Healthy food: blah-tasting have to force myself to eat it costs more re ... Read on »
Gum, part 2: chew on this! by Carla U. Patient Expert Posted in: Blog Posts in Lupus I posted recently about giving up chewing gum a while back because I couldn't find any that didn't have nutrasweet. And nutrasweet, for me, is poison, causing migraines an ... Read on »
How to destroy your finances in 5 easy steps by Carla U. Patient Expert Posted in: Blog Posts in Lupus Hello friends! Are you sick and tired of having a roof over your head? Are you bored by the humdrum existence of knowing where your next meal will come from?Are you c ... Read on »
Beating back the creeping crud by Carla U. Patient Expert Posted in: Blog Posts in Lupus Well it's that time of year. The central heat is on, the sinuses are getting dried out and irritated, the cold air is upon us, and the germs are moving in and taking up re ... Read on »
Gum by Carla U. Patient Expert Posted in: Blog Posts in Lupus My gum-chewing days are essentially over. And while that will probably save me from getting TMJ, I do miss having something to chomp on in place of dessert, or while I'm c ... Read on »
Inflammation by Carla U. Patient Expert Posted in: Blog Posts in Lupus Inflammation. It is the hallmark of many diseases (perhaps *all* diseases), including lupus. We have an epidemic of inflammation in this country, and it's killing us. ... Read on »
a breath of not so fresh air by Carla U. Patient Expert Posted in: Blog Posts in Lupus Hello faithful readers! Today's topic: fresh air. I just returned from a music conference where a friend of mine (Angela) is fighting an uphill battle to make people a ... Read on »
Lupus and Diet by Carla U. Patient Expert Posted in: Blog Posts in Lupus Today I spoke/ sang for a support group at the SLE Foundation in NY City. What a great group of people. Lots of great energy and ideas bouncing around, and I was heartene ... Read on »
Most Women with Lupus Can Have Successful Pregnancy Outcomes by Carla U. Patient Expert Posted in: Blog Posts in Lupus Most Women with Lupus Can Have Successful Pregnancy Outcomes Results from Multicenter NIH PROMISSE Study Find Pregnancy Safe for 80 Percent of Women with Lupus Chi ... Read on »
Lupus Research Findings by Carla U. Patient Expert Posted in: Blog Posts in Lupus Below are highlights of patient-focused research from Hospital for Special Surgery that will be presented at the Annual Scientific Meeting of the American College of Rheum ... Read on »
Enter to win a year's worth of Gluten Free Goodies! by Carla U. Patient Expert Posted in: Blog Posts in Lupus Hello my Gluten-free friends! Just stumbled upon this chance for you to win a year's worth of Gluten Free Yummies from French Meadows Bakery. The info is on Christine ... Read on »
Great Resource for Lupus info and Support by Carla U. Patient Expert Posted in: Blog Posts in Lupus On October 8, I attended and performed/ spoke as The Singing Patient for the Lupus Summit in Charlotte, NC. Room full of Lupus Thrivers and their loved ones ... Read on »
Guest post: Lupus and MS by Carla U. Patient Expert Posted in: Blog Posts in Lupus Multiple Sclerosis and Lupus: The Connections Today we have a guest blogger, Chipper Nicodemus, writing in on the topic of the commonalities ... Read on »