Dimebon Clinical Trial and Mom -- Virtual Dementia Tour
Posted Dec 22 2009 10:36am
I am receiving emails asking me about the status of the Dimebon clinical trial.
By Bob DeMarco
Last week my mother completed all the pre-clinical trial testing. As of yesterday they were waiting for the official report from the cardiologist (EKG), and the results of the brain scan.
If we don't hear today, it will be next week due to the Holiday schedule.
One thing I like about the application process is all the testing. If you don't know this, you have the rights to all the information. In other words, you can have copies of the tests and the results. This is also true throughout the clinical trial.
Bottom line right now, I don't know if we are in or not in the clinical trial.
Keep in mind, if we get in we only have a 50 percent chance of receiving the drug during the clinical trial. One out of two gets Dimebon, one out of two gets a placebo.
I may as well say this here. If we get in the Dimebon clinical trial I won't have anything to say about our experience for several months.
I made this decision because I don't want to "taint" the clinical trial in any way. I don't want to influence others who are considering the Dimebon clinical trial, or any other Alzheimer's clinical trial.
I guess you could infer from our participation in the trial that I am a fan of the clinical trial process. I would encourage everyone to look into the ongoing clinical trials for Alzheimer's and dementia. Go here and search Alzheimer's if you are interested.
There are risk in all clinical trials so if you decide to move forward please read the disclosure information closely before making a final decision.
We are at Brain Matters Research in Delray Beach, Florida for the Dimebon clinical trial. The doctors and support staff are very professional.
Dr. David Watson really has an in depth and thorough understanding of the research that is being conducted into Alzheimer's disease and dementia.
Next year, I'll have to try and get him out for a drink. We already had several very interesting and useful conversations. I'll get him to write or answer questions soon.
David's wife has the same last name as mine. We are not related. Same last name, maybe that means good Karma. I hope so.
Dr. Mark Brody, the neurologist, had an interesting interaction with my mother as he checked her out. He acted as if she was a regular normal person. He even told her a couple of jokes. He spoke directly to her the entire time. Good communications skills.
He did try to interest me in the brain gym they have at Brain Matters Research. For sure I will take a look. I wonder if he knows that I have the memory games software modules, and that I didn't have to pay for it? I wonder if he knows about the Wii? Maybe he should consider subscribing to the Alzheimer's Reading Room. ;>)
While I am at it.
I also have the Second Wind Dreams Virtual Dementia Tour. On my goodness, this is your brain on dementia. I am not kidding, it gives you dementia. You also receive an unbelievable insight into dementia. I really owe them an article.
I think I will send the Virtual Tour to either Judy Berry, Laurry Harmon, or Angil Tarach and let them try it out, and then write an article. Maybe all three. Don't tell them I told you this, as I have not yet told them.
If you want to learn more about the ongoing Dimebon clinical trials:
Bob DeMarco is the editor of the Alzheimer's Reading Room and an Alzheimer's caregiver. Bob has written more than 1,050 articles with more than 8,000 links on the Internet. Bob resides in Delray Beach, FL.