FINALLY I have some really great news to share with all of you. First I want to thank you though for always keeping the kiddos and I in your thoughts and prayers.
Today was Big B's follow-up appointment with his endocrinologist. Three months ago the results from his 24hr urine test ( that measures catecholamines, metanephrines and VMA ) suggested that he was developing pheochromocytomas aka the adrenal tumors that are part of MEN2a. The doctor said we would test again in three months and see how quickly things were changing.
Today we received the results of his most recent test and I am so incredibly happy to tell you that this test came back CLEAN!! As of right now he is NOT showing signs of pheos and we can breathe a sigh of relief for awhile.
Things could of course change with the next test in six months but for now we are just happy to not have to be discussing when to have surgery on him. Again, thank you for always looking out for us. I am so over the moon happy with this news and Big B can look forward to another year of beating the odds.