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Update

Posted Jan 14 2009 8:34pm

Richard had his Mayo appointment about two weeks ago. See previous post for our weather adventures.

Dr. Lacy decided to increase Richard's prednisone to 30 mg daily to see if it wold help his appetite as it had in the past. She stopped his d examethasone completely and continued the Revlimid.

Unfortunately, he had again a low level of CMV virus in his blood, so now's he's back on Valcyte for that. His m-spike continues to creep up now 0.8, along with his IgG and freelyte kappa.

The good news is that the predisone is helping. He's eating better and actually leaving the house and shopping which has always been one of his main steroid side effects.

He also had to get new contact lenses because the old ones had protein deposits, which couldn't be removed. The new lenses have a "plasma coating" that's supposed to help prevent the deposits. $1100 not covered by insurance.

That's the current scoop
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