It was difficult to imagine there would be a way forward at one time. It felt like everything had come to a full stop - with nowhere to go.
I'm not actually due to see Dr. P. until 27th of this month so it was quite a surprise when he called me on Wednesday - with The Plan.
How many doctors would do that? How many doctors would call and spend over half an hour discussing options and putting your mind at rest that there were still treatments out there which could help you....... plus the fact he had already put these plans into motion? Not many I can tell you.
Firstly, my bone scans and x-rays have been sent to a Mr.G. who is a consultant oncological orthopaedist (bone cancer specialist). The main areas of concern are my femurs. Mr G. will decide if they need any artificial strengthening in the form of a rod inserting, or plating, or some concrete stuff injecting into them (sounds lovely doesn't it?) Because where the tumours are the bones are weakened and at risk of fracturing. So we are waiting to hear his opinion now.
Secondly, I'll be having radio therapy on my legs which will help with the pain and could slow down the growth of the tumours at the same time. Apparently it is really good for pain relief which would be great as I'm still taking 100mg of MST a day to control it. Id really like to be able to lower that. It's not a real problem but I do feel permanently 'tiddly' - like I've had a couple of glasses of red wine !
Thirdly, every 4 weeks I'll be having an infusion of a bone strengthening drug. Dr P. has used it before with his prostate patients and there is every reason to believe it could work for me.
Fourthly - to stay on Sutent.
Finally - Dr P. pointed out that until we hear back from Mr G. I really need to rest my legs. And stay off them. Which is easier said than done because it's totally against my nature - as I'm sure he knows !
So thats the plan - and I like it !
Attack my cancer from all sides - don't give it a moments peace - blast it with radiation, drown it in drugs and give me bionic legs if necessary !!