2/11/07 Day 32 Reached summit of Kilimanjaro...had to eat the Sherpas and burned Dr. Hastlingford for warmth...
Just joking :)
Its day four and I still can't see. I did discover yesterday by accident that if someone surprises me my right eye pops open. This only lasts for about 10 seconds but, that seems promising. I'm still having problems opening my left eye. But when I get my steroid drops my vision is clear. That's good news I suppose.
The Doctor keeps telling me that I am magnesium deficient. I take two supplements a day and receive magnesium by IV every time I get a transfusion. I asked a nurse yesterday what foods I could incorporate that were magnesium rich, and she didn't have a clue. Chris looked it up and it turns out that one of the foods that I have been craving is a good source of magnesium. Take that Atkins potatoes are your friends.
I have been passing the time by listening to books on tape that Chris has downloaded onto my MP3 player. They make the day go by. You really take for granted the passing of the day when you can see. I have absolutely no idea what time it is until Chris tells me it's time to eat or take medicine. I'm really hoping that my eyes heal quickly so that I can go back to being normal.
Food is beginning to frustrate me. Because I can't see what I'm eating. I also have a hard time with the proximity of the food to my mouth. I usually end up hitting my face with it. It's hard to find foods that I can comfortably eat in public. I tried to eat waffle fries from Chik-Fil-A yesterday and almost couldn't manage it. The chicken sandwich was a disaster, since the chicken kept sliding out of the bun and I couldn't see it to fix it. At this point the only thing that I can comfortably manage is a slice of pizza or a peanut butter and jelly sandwich.
I would really like to be able to see.
On a positive note I feel like I did before I was diagnosed. Even though my counts are down I have more energy than I have since this has started.
I received a care package from Mrs. Gilbert's 8th Grade Class the other day. They all wrote letters that were very sweet and made me smile. It's nice to know that there are such great kids out there. I need to send them a thank you card unfortunately I can't see to write it. I hope that they don't mind it being a little late. It honestly was one of the best gifts and I am thankful.
Poor Chris is having to type all of this so I am going to give him a break. I'll keep you posted.
(Dictated by Ann to Chris)
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Reached summit of Kilimanjaro...had to eat the Sherpas and burned Dr. Hastlingford for warmth...
Just joking :)
Its day four and I still can't see. I did discover yesterday by accident that if someone surprises me my right eye pops open. This only lasts for about 10 seconds but, that seems promising. I'm still having problems opening my left eye. But when I get my steroid drops my vision is clear. That's good news I suppose.
The Doctor keeps telling me that I am magnesium deficient. I take two supplements a day and receive magnesium by IV every time I get a transfusion. I asked a nurse yesterday what foods I could incorporate that were magnesium rich, and she didn't have a clue. Chris looked it up and it turns out that one of the foods that I have been craving is a good source of magnesium. Take that Atkins potatoes are your friends.
I have been passing the time by listening to books on tape that Chris has downloaded onto my MP3 player. They make the day go by. You really take for granted the passing of the day when you can see. I have absolutely no idea what time it is until Chris tells me it's time to eat or take medicine. I'm really hoping that my eyes heal quickly so that I can go back to being normal.
Food is beginning to frustrate me. Because I can't see what I'm eating. I also have a hard time with the proximity of the food to my mouth. I usually end up hitting my face with it. It's hard to find foods that I can comfortably eat in public. I tried to eat waffle fries from Chik-Fil-A yesterday and almost couldn't manage it. The chicken sandwich was a disaster, since the chicken kept sliding out of the bun and I couldn't see it to fix it. At this point the only thing that I can comfortably manage is a slice of pizza or a peanut butter and jelly sandwich.
I would really like to be able to see.
On a positive note I feel like I did before I was diagnosed. Even though my counts are down I have more energy than I have since this has started.
I received a care package from Mrs. Gilbert's 8th Grade Class the other day. They all wrote letters that were very sweet and made me smile. It's nice to know that there are such great kids out there. I need to send them a thank you card unfortunately I can't see to write it. I hope that they don't mind it being a little late. It honestly was one of the best gifts and I am thankful.
Poor Chris is having to type all of this so I am going to give him a break. I'll keep you posted.
(Dictated by Ann to Chris)