Every time the phone rang today I was filled with dread. I knew that the odds of the call being from the endo's office were close to zero, and yet still I am dreading that call.
Today's calls ran the usual gamut of no-ones and solicitations, but I also got a few calls from folks just checking in on me -- do I have any more news? how am I doing? do I need any help with anything?
Such calls are nearly overwhelming in their kindness. I feel guilty because I cannot give any more information than "I should know more on Monday, hopefully," and "I'll let you know as soon as I know more about what's going on."
The proper term is supportive. I really do feel as if some of the weight of the uncertainty is lessened by sharing it.
Here is some additional information about the "genetics" of this condition that was written by our Genetic Counselor and other genetic professionals: http://www.accessdna.com/condition/Chromosome_Abnormalities_Rings_and_Markers/239. I hope it helps. Thanks, AccessDNA