The CT Scan results came back very badly today. The cancer has spread past my thyroid and I also have cancer in my abdomen, liver, "gut", and adrenal glands. I am now considered Stage 5 in my cancer. The worst stage. Long term survival rate is less than 16% according to the internet.
The good points? Well this isn't in my heart or lungs yet. It's a slow moving cancer (meaning I have had this for a long time) so I don't have to worry about making it to my 30th birthday.
The bad points? Radiation therapy and chemotherapy really don't do much to cure this. The only hope is removing my adrenal glands, removing part of my liver, and trying to remove as many tumors as we can. Oh and removing my thyroid of course.
This form of cancer is not curable and as far advanced as it is it will most likely pop up in other places in the future. I am stuck with this for the rest of my life because it is a cellular genetic cancer. It's a gene mutation and as such it is forever changing and starting new cancerous cells.
So no, Jo can't be cured of her cancer. I will most likely have one surgery possibly every year for the rest of my life to remove new growths or an organ that it has overrun. I will be on thyroid medication, most likely calcium supplements, and also adrenal medication as well for the rest of my life plus stars know what else they will toss in.
My thyroidectomy has been cancelled. I have to be referred to a specialist for the surgery now and then begin cancer treatment and/or surgery for removal of other things after that.They are wanting to refer me to MD Anderson center in Houston, TX as it is one of the best in the country and deals with cancer like mine. I'm trying to find something closer to home to make it easier on all of us. Not sure how that will go.I can't believe all this is going on. :(