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my b-n-l has been diagnosed with xanthogranuloma. This is probably wrong as all treatment to date for this disease has failed


Posted by steve

Exhibited for 15 years plus

major operation to remove and rebuild face

growths continue after operation

radiation fails to help

cortisone injections control but do not reduce the tumors

Started on face, now spreading to hands 

growing int eye socket, and bones of the face, primarily the nose

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