Sometime in the early 80’s I read an article from Good Housekeeping about a woman who had lost all her body hair. I found her story fascinating. Thereafter I thought of her every time I shaved my legs. About 10 years later, at the age of 31, I looked in the mirror and suddenly realized my hair looked thinner. Then I looked at my brush and was totally shocked at the amount of hair it held. At first I thought I was going the way of my grandmother and aunt who’s hair grew very thin as they aged. But then my beautician noticed a bald spot on my next visit. I was a nurse by then and looked up Alopecia. I realized that it could lead to total hair loss. THE SAME THING THAT WOMEN WENT THROUGH! I felt a sense of doom. No. This can’t be what I have. It can’t be. But it was.
It took 5 years for my hair to go. the eyebrows and eyelashes went last. That was hard. Each phase of hair loss brought more tears. Tears that felt like they were coming all the way up from the soles of my feet. I coped by telling myself to keep it all in perspective. As a nurse I knew that there are a host of autoimmune diseases out there. I could live without hair.
I’ve had Alopecia Universalis for 16 years now. I would say that the worst part of AU is sensing a strangers pity or discomfort when they pass me. The best part of AU is being able to get ready for virtually any event in 30 minutes or less!
I wore a wig for 6 years, but always wanted to throw it out the car window. I chose to wear an ever evolving mix of bandanas, scarves and hat combos. Which eventually led me to beaubeaus.
I love beaubeau! I love that they are neat, stylish and comfortable. I love the classic style of the bun and feeling like I have “flip ability” when wearing it down. They look great with hats too.
I have so many beaubeau that it is hard to choose my favorite. As of writing this I still don’t know which I will choose!
Thank you for this opportunity to share some of my story.