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Home and busy - sorry for no post

Posted Aug 19 2009 6:32pm
Yesterday at 2:30 the doctor came into my room and said that my biopsy results came back at 1-2%, totally OK and acceptable and I could go home immediately. Now we live 3 hours away and had no rent a car, but that did not stop us from getting out of there immediately. I called Super Shuttle, a van service and they said they could be there at 3:45, I then booked us the 5:45 flight from Tampa to Ft Lauderdale. Doctors gave orders, prescriptions, took the needle out of my port and we threw it all in our suitcases and left. We got to airport and it was delayed half hour, so we had a quick bite at Chili's. On the plane I wore my mask to prevent germs from getting me sick. My counts still were not totally recovered so I was sent home on few antibiotics for a week and I will be heading to Dr. Aliff my local oncologist Friday for blood counts, and see him 2-3 days a week. Our friend Chris picked us up and we were home by 8 p.m. and totally surprised the kids, there was lots of jumping up and down and giggling, we had a great night together and there are no words to describe being home with them and just being Mommy again, good thing is they don't miss a beat and put you right to work!

Today was busy but I feel pretty good so we were able to have a nice breakfast, play, showers, and then the big kids went to Chuck E Cheese with Amber and Olivia and Steven and I went to grocery and ran a few errands. We all came home and we took a nap and then had a great dinner, it felt so good to cook and have a great home cooked meal together, and then we went for a nice walk around lake we have in our neighborhood. That did me in, I was exhausted, but pushed ahead, both Livy and I were ready for bed and tired, but we made it home and it is nice to relax in cool air conditioning.

Things are back to normal right away and that feels good, this is why this is the first chance I had to get on computer since we got here, we have not even had a chance to unpack yet! We are taking this week to just be together as a family.

My tentative appt at Moffit is June 30 th, I have to have labs, another biopsy and an scheduled to be admitted for my consolidation chemo for 5 days. If all goes well, I will be home after 5 days and then do my transfusions, etc that take place once counts fall at home locally with my oncologist. Since the kids are not in school yet, we are planning on all going for the 5 days, no reason to leave them behind if we do not need to. We will also have a meeting with entire transplant team to find out how all that works. They took my blood on Monday and are starting the donor search, it can take awhile, but it also could be quick, so no idea when that will be. Consolidation chemo's are required every 6-8 weeks to keep me in remission and healthy till transplant.

Thank you for all the prayers and well wishes - they worked and I am healthy again and home being Mommy - right where I need to be. I am not sure if I will get to update each day, but will try my hardest.

Good night!
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