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GVHD of the Mouth (Day 192)

Posted Aug 13 2009 7:50pm 2 Comments
There are small bumps that appear on the roof of my mouth. They seem to move around every 12 to 24 hours. Can you see what looks like a small blister on the left side of my mouth (it's on the right side of the picture in the middle)?Last night there was one about the same size on the other side (see the red spot in the below picture?).


I know that my tongue looks gross (that's the thrush) and I have a lot of fillings in my teeth (I love sugar!).

Kim's operation went well. She is feeling less pain today. Thank you for your prayers. It was strange for me being on the other side of the operating room door. She did very well.

I had my pentamidine inhale treatment today at Bronson Hospital in Kalamazoo.

We have been in three different hospitals since Tuesday. Hopefully, we are done with the hospitals for this week. :-)

My oncology doctor told me, Tuesday, that her dream is that someday they don't need chemotherapy or radiation to treat leukemia. There will just be a switch that they can turn that will make the body stop making leukemia cells and make just normal cells again.







Comments (2)
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my son is 2 1/2 he has little red spots on the roof of his mouth, and a mild fever what is it?

Has he had a bone marrow transplant or chemotherapy?

Little red spots could be caused by a low platelet count (thrombocytopenia)

I had little red spots on my arms and legs when I had low platelets.

A CBC blood test could determine if that is the cause.

Mild fever can be associated with infection and/or high white cell count.

It would be a good idea to get him in to see a doctor and get a blood test.

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