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Guillain Barre Info

Posted Mar 11 2010 9:29pm
It's been brought to my attention (and thus occurred to me ;) that I probably haven't explained Guillain Barre Syndrome or GBS very well. That is, what it is, and where it came from. In all likelihood, it has been caused by the 9 cycles of the experimental drug SGN-35 I received over the last several months. There are only 2 other people who've developed this condition out of over 300 people in the world who've tried the drug, what luck!

Here's a clip for GBS I found on the net
By Mayo Clinic staff

Guillain-Barre syndrome is an uncommon disorder in which your body's immune system attacks your nerves. Weakness and numbness in your extremities are usually the first symptoms. These sensations can quickly spread, eventually paralyzing your whole body.

The exact cause of Guillain-Barre syndrome is unknown, but it is often preceded by an infectious illness such as a respiratory infection or the stomach flu. Luckily, Guillain-Barre syndrome is relatively rare, affecting only 1 or 2 people per 100,000.

In its most severe form, Guillain-Barre syndrome is a medical emergency requiring hospitalization. There's no known cure for Guillain-Barre syndrome, but several treatments can ease symptoms and reduce the duration of the illness. And most people do recover completely.

By Mayo Clinic staff

The exact cause of Guillain-Barre syndrome is unknown. In about 60 percent of cases, an infection affecting either the lungs or the digestive tract precedes the disorder. But scientists don't know why such an infection can lead to Guillain-Barre syndrome for some people and not for others. Many cases appear to occur without any triggers.

In Guillain-Barre syndrome, your immune system — which usually only attacks foreign material and invading organisms — begins attacking the nerves that carry signals between your body and your brain. Specifically, the nerves' protective covering (myelin sheath) is damaged and this interferes with the signaling process, causing weakness, numbness or paralysis.

Like I mentioned, mine most likely wasn't caused by an infection but the drug although no one has been able to explain why...

I have a feeling that if this eventually goes away, it's going to take months. I just have to continue to adjust to being disabled. That said, I'm going to keep rolling...

I can't help but wonder what may come next... I guess you could say that I've become a bit cynical.

Thanks for the support :)
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