Yes this is Miss Haven playing with barbies. Kris said she played for over 20 mins! I know I sound crazy but she never plays!
Haven met with Oncology today and I'm excited because it came back that she has lost a pound and has grown 1/2 an inch!!! This is awesome. In May she was about 1% on the growth chart. We did HiCY and she bumped up to 5%. Since the last Endo meeting she has grown more! We have been relaxed on her diet due to everything she has been through....so it will be back to 1000 calories again. She was probably at 1500.
We don't have anything to report on the MRI. Her tumor remains dormant and stable.
Haven did not do IVIG today. Her immune system has been kickin buns and staying at a great level so far. They did another test today so if it's low she'll do it next week.
On Nov. 20th she will be in Oncology by 7:30 to do hormone levels. Her growth hormone was low in May when we checked so this will show what has happened in 6 months. I'm excited to see it since all the treatments and she has grown.
Yes this is Miss Haven playing with barbies. Kris said she played for over 20 mins! I know I sound crazy but she never plays!
Haven met with Oncology today and I'm excited because it came back that she has lost a pound and has grown 1/2 an inch!!! This is awesome. In May she was about 1% on the growth chart. We did HiCY and she bumped up to 5%. Since the last Endo meeting she has grown more! We have been relaxed on her diet due to everything she has been through....so it will be back to 1000 calories again. She was probably at 1500.
We don't have anything to report on the MRI. Her tumor remains dormant and stable.
Haven did not do IVIG today. Her immune system has been kickin buns and staying at a great level so far. They did another test today so if it's low she'll do it next week.
On Nov. 20th she will be in Oncology by 7:30 to do hormone levels. Her growth hormone was low in May when we checked so this will show what has happened in 6 months. I'm excited to see it since all the treatments and she has grown.