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Cure AT/RT right NOW!

Posted Dec 29 2008 6:35pm
Via Your Cancer Family Forums:

In March of 2009, the team at Dana-Farber Cancer Institute, in collaboration with their European colleagues, along with their laboratory counterparts, will be hosting an international joint consensus meeting, “CNS Rhabdoid Tumors: Integrating Biologic Insights with Clinical Success”, to exchange ideas and the latest information on [AT/RT], working towards understanding, building and planning future therapy strategies. [They] hope that you will join us by donating to their effort as they work towards a cure for this devastating tumor that has affected us in so many ways.

Please make your contributions to:

“Cure ATRT Now” Fund
c/o Dr. Susan Chi
Pediatric Neuro-Oncology
Dana-Farber Cancer Institute
44 Binney Street SW331
Boston, MA 02118

On a personal note, I realize that many families are struggling with the economy right now, the costs of raising their own children, and that funds available for charitable giving are more limited than ever. If you have the resources to give a little, on behalf of Vivi and all the babies and children battling AT/RT, please, please, please consider doing so.

AT/RT has a unique challenge in that it is incredibly rare, with about 3 children out of a million diagnosed each year in the United States - only about 30 new cases annually ( citation ). As a result, funding for research is limited and clinical trials can only have small sample sizes. With so many different areas of research currently in pre-clinical stages, crossing from laboratory to clinical application could mean the difference for Vivi, and for other babies currently fighting their battles.

It's a long shot, but that does NOT mean we shouldn't try!

(P.S., the folks at Dana Farber told me about this conference a few months ago and noted that they thought that there was potential for some clinical applications to flow from it quickly.)
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