The Decadron is keeping all my large muscles in a state of rubberiness. My legs tends to buckle, my arms are weak. But with each day I am getting stronger and stronger. Two days ago I worked around the house, played with the kids, managed to avoid bumping into anything, and went to the famous Stratham Fair for a couple of hours:
Stratham Fair 2010
Feeling better after this outing, yesterday we went on an in-town hike complete with my playing catch (something I could not do 3 weeks ago) with the kids, walked along Swazey Parkway , payed some more catch, let the kids climb our town driftwood sculpture,
got some coffee, and then retired back home to get Jack ready for his baseball game.
For me, I could not read, write, or speak a few days ago, this is a huge step forward. Means that my swelling is going down, and that the Avastin may be speeding it all along. The docs want me off the Decadron ASAP so that my immune system will mop up the remaining cancer cells. The silver lining in all this is that there is nothing new, but, old, necrotic tumors that are (for some unknown reason) causing a large amount of brain irritation. They said that I have an ‘overly sensitive brain.’ I’ll take that over new growths any day.