Here we are at the Auto Club Speedway for the Nascar Foundation Blood Drive. I had the opportunity to donate. They asked if we wanted a tour of the speedway and you know we didn't turn down this offer. It was a terrific tour, we even had the chance to get out on to Victory Lane and yes rang the "MOBELL VICTORY" bell . That was a treat all on its own. Before you know if we were driving up on the track all the way around. It was awesome!
We are glad that we have had some great opportunities come our way, the opportunity to be together as a family in our home without mentioning cancer or appointments that we had to be at City of Hope at 6 am in the morning. To feel a sense of calmness come over the house hold these couple of weeks.
Not having to go to City of Hope and not having your heart in your throat all the time, the sense of piece of mind " right now", and I say " right now" because its the" right now" that we live in. I have said before we never turn our backs on this sarcoma even if its gone for "right now". Later, when CT Scan and labs are needed that uneasy feeling comes crawling up from the pit of your stomach to the top of your throat. That uneasy feeling is why I say "right now'.
We have had more time to spend with family, volunteering for Think Cure at Dodgers Stadium (a first), going to the beach before summer was over to celebrate Machini's 6th birthday and go to our first Oceans of Hope 2009 that we have been trying to attend since seeing Marco swim in the ocean just months after his surgery. (it brought tears to my eyes.) It's amazing the things he can do when he sets his mind to it.
We attended birthday parties, BBQ's, just hangin' out and eating all day at Momma M, or playing poker with Salt-n-Pepper and Medicated Man, or spending some time with Bee, Nate, and Jeronimo. All of these thing may not be BIG things to some, but it is a great deal to us.
It's been a long time coming for these moments in life. We had forgotten, I think, for some time what it was like to live outside of City of Hope.
Summer will soon be over, but I am glad that we got to do things with the kids outside of City of Hope.
UPDATE: I am very happy to report that Marco has been doing very well thus far.
The Phase III trail has been going good. No side affects, but his cholesterol has been significantly high so they have been monitoring him for that. He was not happy to hear he had to cut down on shrimp, carne asada, and menudo, etc...etc...etc...
His hair has been growing about normal now. It had been taking its time growing, its now dark brown and really curly. It makes him look more handsome now.
CT Scan and labs done on Sept. 28 and I will let you know what is going on then.