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A question and an answer about HDIL2 with Dr. Janice Dutcher (!)

Posted Nov 04 2009 10:05pm
Dr. Janice Dutcher

Dr. Janice Dutcher

After my run-in with my oncologist and his new sour attitude on the prospects of HDIL2 as a treatment for me I took it upon myself to do as much research and interviewing and reading as possible to make sure that by focusing on HDIL2 as my long term goal I am doing the best thing possible for me. And guess what? I am.

I found countless examples online and success stories and patients who all told me about their brain mets issues and how they went on to responses with HDIL2, despite what my oncologist said to me a few nights ago.

My final move was to email Dr. Janice Dutcher in the Bronx, who runs the biggest HDIL2 program in the country and ask her for yet another opinion on this, even though the Beth Israel team had already confirmed my thinking already. Getting her response was one more rocket in the arsenal.

Here is what I emailed her:

“Hello Dr. Dutcher,

Sorry for the intrusion but I got your information from the Kidney
Cancer email list online from one of your many patients and fans.

I just wanted to find out what the best way to get an informal opinion
from you on my current situation and HDIL2 treatment.

I am  a male in my late 30s, living in the Boston area. I was diagnosed 18
months ago with RCC in my left kidney, which was promptly removed when found with a 5.5 cm clear cell tumor. Subsequent scans came up NED
until 9/2008 when small nodules appeared in both lungs. We waited 3
months, rescanned and a couple of the nodules have gotten bigger. My
RCC specialist, Toni Choueiri at Dana Farber got me into the Beth
Israel HDIL2 program for consultations and the team there was very
encouraging about my prospects for success.

While waiting for my initial round of exams and scans, I suffered a
seizure and woke up in the ER. MRI found a 1.2 cm superficial tumor in
my front parietal lobe. I had it removed 3 days ago and am currently
recuperating at Brigham and Women’s hospital. Everything went fine and
I am speeding along. My oncologist stopped by last night and told me
that he is “no longer as excited about the prospect of HDIL2 at this
point.” Of course, i was taken aback and pushed him on it and he said
he worried about the brain barrier issue, swelling, a lower success
rate now, and several other things that I was too upset to remember.
He said he would never talk me out of the therapy, but I absolutely
refuse to think negatively about it at this point until I get more
opinions.

I checked in with the HDIL2 team at Beth Israel to inform them of my
latest developments and they did not flinch. They said that they have
had patients with single brain mets, which after resection, they have
gone on to full or partial responses with HDIL2. Have you found the
same thing? Would you agree that this is still the best option for
someone like me, who is otherwise healthy and strong? Or does a brain
met make HDIl2 more worrisome?

Any information would be helpful. If I was closer to my hometown I
would be working with you in the Bronx!

Thank you so much in advance
http://theenemyreturns.wordpress.com/”

Drumroll…(and she answered very promptly):

“Hi there -   I would definitely go for HDIL2 after removing the brain tumor, and repeating a scan 4 weeks later to make sure there is nothing new popping up.    I too have successfully treated patients after such an episode, and if fact am starting someone tomorrow after treatment to a tiny brain tumor.

All the best.  I would definitely give the HDIL2 a try as first salvo.   Jan Dutcher, M.D.”

—So there we have it. A solid answer from a superstar of the profession and the treatment therapy.

Dr. Janice Dutcher

Dr. Janice Dutcher

After my run-in with my oncologist and his new sour attitude on the prospects of HDIL2 as a treatment for me I took it upon myself to do as much research and interviewing and reading as possible to make sure that by focusing on HDIL2 as my long term goal I am doing the best thing possible for me. And guess what? I am.

I found countless examples online and success stories and patients who all told me about their brain mets issues and how they went on to responses with HDIL2, despite what my oncologist said to me a few nights ago.

My final move was to email Dr. Janice Dutcher in the Bronx, who runs the biggest HDIL2 program in the country and ask her for yet another opinion on this, even though the Beth Israel team had already confirmed my thinking already. Getting her response was one more rocket in the arsenal.

Here is what I emailed her:

“Hello Dr. Dutcher,

Sorry for the intrusion but I got your information from the Kidney
Cancer email list online from one of your many patients and fans.

I just wanted to find out what the best way to get an informal opinion
from you on my current situation and HDIL2 treatment.

I am  a male in my late 30s, living in the Boston area. I was diagnosed 18
months ago with RCC in my left kidney, which was promptly removed when found with a 5.5 cm clear cell tumor. Subsequent scans came up NED
until 9/2008 when small nodules appeared in both lungs. We waited 3
months, rescanned and a couple of the nodules have gotten bigger. My
RCC specialist, Toni Choueiri at Dana Farber got me into the Beth
Israel HDIL2 program for consultations and the team there was very
encouraging about my prospects for success.

While waiting for my initial round of exams and scans, I suffered a
seizure and woke up in the ER. MRI found a 1.2 cm superficial tumor in
my front parietal lobe. I had it removed 3 days ago and am currently
recuperating at Brigham and Women’s hospital. Everything went fine and
I am speeding along. My oncologist stopped by last night and told me
that he is “no longer as excited about the prospect of HDIL2 at this
point.” Of course, i was taken aback and pushed him on it and he said
he worried about the brain barrier issue, swelling, a lower success
rate now, and several other things that I was too upset to remember.
He said he would never talk me out of the therapy, but I absolutely
refuse to think negatively about it at this point until I get more
opinions.

I checked in with the HDIL2 team at Beth Israel to inform them of my
latest developments and they did not flinch. They said that they have
had patients with single brain mets, which after resection, they have
gone on to full or partial responses with HDIL2. Have you found the
same thing? Would you agree that this is still the best option for
someone like me, who is otherwise healthy and strong? Or does a brain
met make HDIl2 more worrisome?

Any information would be helpful. If I was closer to my hometown I
would be working with you in the Bronx!

Thank you so much in advance
http://theenemyreturns.wordpress.com/”

Drumroll…(and she answered very promptly):

“Hi there -   I would definitely go for HDIL2 after removing the brain tumor, and repeating a scan 4 weeks later to make sure there is nothing new popping up.    I too have successfully treated patients after such an episode, and if fact am starting someone tomorrow after treatment to a tiny brain tumor.

All the best.  I would definitely give the HDIL2 a try as first salvo.   Jan Dutcher, M.D.”

—So there we have it. A solid answer from a superstar of the profession and the treatment therapy.

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