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butterflyh

California Le3 5PR
hi I am a 32 yr old that been suffering with lupus for many years now and struggled to get a diagnosed (diagnosed 3yrs) though I think once you have you try and stay hopeful but this last 18mnths have been hell!! :( ... I cannot believe way things have gone but trying to hang on in :).. 4 my son who although towers over me and is my protector so he likes to think!! I'm intrested in anything to do with lupus, athritis, fibromylia , chronic pain, epilepsy ,... Full Bio
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hi I am a 32 yr old that been suffering with lupus for many years now and struggled to get a diagnosed (diagnosed 3yrs) though I think once you have you try and stay hopeful but this last 18mnths have been hell!! :( ... I cannot believe way things have gone but trying to hang on in :).. 4 my son who although towers over me and is my protector so he likes to think!! I'm intrested in anything to do with lupus, athritis, fibromylia , chronic pain, epilepsy , depression, because I always knew long before GP referred me to hospital after 2 yrs of telling him sudden crazy body rashes werent bugs , pityrirsis, flu and last 7 ys of unexplained illnesses , sezuires mild odd rashes put down to reactions etc were someting more because I was always ill all the time it seemed & yes I was strange like he always had said. Last year I got addmitted hospital 4 xs since things been awful. I have always been a strong minded capable positive person. I worked hard even though it was hard before with sezuires, chronic migraines extreme fatigue joint pain but I wanted a good life for me and my son I was self-employed psychotherapist. Thats now impossible i'm finding hard esp to change over to benifits (gets me mad when I always paid tax my gp supported me). I'm glad I had child when I did because lupus caused me to have an early menopause , eplilepsy did influence my oppertunity to have children but lupus took it . I have arthritis in my joints swelling pain stiffness then with fibromylia aswell knightmare!Worst is when I got a severe bullous eruption so mainly stay on my dose of 30mg steroids pain in the arse but just get odd blister now during flare be nice if help me put weight on cause lupus eats away at me makes me lose weight. I'm now on my 3rd set of Immunsuppressives MMF. Also a cocktail of all other meds. Id Like get information from others share information. Keep up hope :)