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brenda W.

Mother to two wonderful children. Ella -age 3 and Joey Cooper- age one. Joey Coop was born with Hirschsprung's Disease. A disease of the colon. He has had two surgeries and is missing 30% of his colon.
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a bump in the road….. by brenda W. Posted in: Blog Posts in Children's Health Well right after his 4th bday he started w/ a minor wet cough. Pooping started to slow, maybe because of the mucous. Then just in time for Xmas his pooping stopped. We ... Read on »
Four YEAR old! by brenda W. Posted in: Blog Posts in Children's Health Joey had a wonderful week of celebrating with all his friends and family. He’s doing so well, growing, eating and pooping like a champ!!! Its been 10 mos since his secon ... Read on »
Christmas gifts for kids at Cincinnati Children’s Hospital by brenda W. Posted in: Blog Posts in Children's Health My co-worker has been sending an email around for a few years with a request to donate gifts to hospitals.  There is practically no overhead with this charity.  You buy th ... Read on »
10 months post Botox (#2) and CELEBRATING by brenda W. Posted in: Blog Posts in Children's Health About to go into the holiday season without worrying about irrigations. What a joy!!!!!!!!! Joey is turning four and completely potty trained. We are blessed. We are n ... Read on »
Should your HD child have genetic testing? by brenda W. Posted in: Blog Posts in Children's Health Here is something I read on the Johns Hopkins HD research page. ~~~~~~~~~~~~~~~~~~~~ Is there another syndrome caused by changes in the RET gene? Multiple Endocr ... Read on »
Slightly elevated TSH by brenda W. Posted in: Blog Posts in Children's Health The blood work ordered by CHOP came back a little funky. His TSH was a 5 and should be below 3, according to endo. It might be because he recently had a very very little ... Read on »
follow up at CHOP for endo results by brenda W. Posted in: Blog Posts in Children's Health Went down to CHOP yesterday.  Long story short they said I shouldn’t be to worried about the nodule.  It is very very small and does not look suspicious.  They took some b ... Read on »
pediatric endocrinologist and surprising results by brenda W. Posted in: Blog Posts in Children's Health So we went to ped endo to have a thyroid ‘check-up’ due to Joey’s RET mutation. His blood labs came back OK but w/ two levels that were on the high end of normal. Then t ... Read on »
Genetic Testing results by brenda W. Posted in: Blog Posts in Children's Health Joey’s genetic testing results came back. He has a mutation on the RET gene (exon 2). Apparently a mutation on this exon has never been seen before and the lab who did t ... Read on »
Botox #2 ( 5 months in) by brenda W. Posted in: Blog Posts in Children's Health Things are great. Fully trained, even at night. No accidents, no smearing. Pooping on the potty like a champ. We, for the most part put him on the potty 3x a day and ... Read on »
Botox (#2)….2 months in by brenda W. Posted in: Blog Posts in Children's Health Doing incredibly well. Fully potty trained. Still in diapers overnight but have3 been waking dry and clean for months. Pooping really well…1-3x per day. I sit him on t ... Read on »
Johns Hopkins HD Research Study by brenda W. Posted in: Blog Posts in Children's Health easy…send in blood or saliva samples from all immediate family members, medical questionaire.  does not cost you anything and does not take much of your time.   GET I ... Read on »
Botox #2…. a few weeks in by brenda W. Posted in: Blog Posts in Children's Health I messed up his diet and caused some back up. We had to go back to irrigating at the 1.5 week post Botox. I THINK it was because I gave him some pulled pork and he does ... Read on »
Botox #2…January 2012 by brenda W. Posted in: Blog Posts in Children's Health So I won’t bore you w/ the details re: new surgeon at NYU (who is moving to HUMC) and old surgeon who still has privileges at HUMC but is now in private practice (he was ... Read on »
new local surgeon, Cipro and more (Fall- early winter 2011) by brenda W. Posted in: Blog Posts in Children's Health In Sept (2011) 7 mos post Botox we hit another roadblock. He stopped pooping, we figured we were ready to go back into OR for another round Botox. We started irrigating ... Read on »
Botox…..5 months in by brenda W. Posted in: Blog Posts in Children's Health Things are really good. Since my last post Joey has been pooping really well, 2-4x per day into his diaper. I remind him every couple hours to ‘give me some poopy’ and t ... Read on »
Botox 4 months in by brenda W. Posted in: Blog Posts in Children's Health So around 12 weeks in things got better again.  Poopy diapers and pooping into my gloved hand!  Things are good.  Then he gets sick again, things slow down, pick back up a ... Read on »
Botox, week 12 update by brenda W. Posted in: Blog Posts in Children's Health Well things started going a little crazy around week 6. His poop decreased and then pretty much stopped. Some fever, vomiting and a trip to the surgeon. Surgeon thought ... Read on »
Botox, 4 weeks in. by brenda W. Posted in: Blog Posts in Children's Health So far, so good. His poop has really slowed down to 1-3x per day. He is not on anything to ‘help’ him go. Yesterday I did try ‘Natural Calm’ magnesium supplement and he ... Read on »
Botox…6 days in by brenda W. Posted in: Blog Posts in Children's Health The first few days were pretty awful. Poop ever few minutes along w/ “POOPY OUCHY, POOPY HURTS” and a crying/screaming Joey Cooper. The wicked HD rash came back very qu ... Read on »