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progress report pleurodesis day 20 home 1

Posted Oct 02 2012 2:02pm

Yesterday when my husband finished his work day, he came to pick me up and take me home from rehab. Joy of joys. The rehab staff kept asking me if I wanted to stay longer, and without hesitation I replied no. Even though I think I could benefit from further OT and PT, I think my body is suffering from the overall environment. I just felt sick since Saturday, and I’m thinking that I might feel better after I start sleeping again. Plus, during the day now we have a patient who hollers constantly for water, for a nurse to help her or, if a nurse is helping her, that the nurse is hurting her. It goes on all day long. In fact, the very mild-mannered woman who shares that roomI really feel for herat one point hollered back at that woman to “just shut up.” At some point she falls asleep and is finally quiet for a brief time. I don’t even know where she gets the energy to holler that much.

Riding home felt like I was escaping for freedom. It felt great. When we got home, I found the quiet ambiance so very comforting. A short time after I was home sitting up in a chair that my husband configured for me, we received a delivery of a hospital bed. While I was gone, my husband shuffled the furniture around to accommodate space for a hospital bed in our sitting area. The delivery came just after I got home, and the bed is great. It even has a Tempur-pedic healthcare mattress, which is very comfortable. But I did spend my night in my own bed in the upstairs bedroom, taking the 14 stairs very slowly with Marvin’s watchful oversight.

Last night my husband thought I was feeling warm, so he took my temperature last evening and found I had a 100.8 degree fever. I wondered whether this is what was making me feel sick the last couple of days. Interesting that even after I told them I was not feeling well and described it as feeling like I was trying to catch something, they never took my temperature. They took my blood pressure and blood glucose regularly but never my temperature. So I am drinking lots of fluids and hoping that my body will fight off whatever it is that is causing this temperature.

This afternoon I have an appointment with my pulmonologist. Other than that, I plan to rest and drink fluids. I slept the entire night, I believe, without moving an inch. I had wondered whether my sleep pattern was altered, but after sleeping last night a full seven hours plus another couple of hours this morning after Marvin and I came downstairs, I see that I am able to sleep when the conditions are good. Mind you, I’m not even that light a sleeper; Marvin wakes up more often at noises than I do. Although I have fought having a hospital bed, I will admit this morning it was nice to come downstairs from the night and be able to lie down again comfy and cozy and actually fall asleep again on the hospital bed. With that nice mattress it is quite conducive to sleep. My sisters helped us buy the bed and the bedding that is on its way. They live far away but are always in touch and supportive. My family is wonderful. 

I just want to start feeling better. I hate feeling so weak and sick. I keep thinking that if I fall asleep, I will wake up and feel restored again. My willing it should make it happen, right.

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© 2004–12 Donna Peach. All rights reserved.
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