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did i say cancer’s subtler side effect

Posted Aug 28 2009 8:07pm

I wrote recently about cancer fatigue. Today it was not subtle. I have done everything short of smacking my own face to stay awake. On the looming scale of 1 to 10 my fatigue was at the top: 10, subverting my other side effects. Feeling wobbly and nearly nauseated from the fatigue, I really had to fight to stay alert all day. When I got home from the office, I lay down and fell instantly and soundly asleep. I would surely have awakened by no accident, but my husband knew I wanted to be up after a certain time and made sure I woke up. Hehe, no he didn’t smack me in the face.

It’s times like these that feel like I’m in an altered universe; I never used to get tired without having exhausted myself with physical activity. Today I’ve done nothing strenuous at all, and yet I am tired down to the bone in every part of my body. I swear, every ounce and inch of me is exhausted.

My hemonc ordered an MRI brain scan before I have any Avastin® while we await authorization for my new treatment and my Aranesp® injection. I’ve been reading about the use of Avastin with Taxol at various sites, but I’m including a link to the information I found at WebMD, which summarizes the use of Avastin in plain language. I will be researching and posting more links, but not tonight.

Tonight, I’m crawling into bed and snuggling up to my husband to dream sweet and feel safe.

5 6 7 8

I wrote recently about cancer fatigue. Today it was not subtle. I have done everything short of smacking my own face to stay awake. On the looming scale of 1 to 10 my fatigue was at the top: 10, subverting my other side effects. Feeling wobbly and nearly nauseated from the fatigue, I really had to fight to stay alert all day. When I got home from the office, I lay down and fell instantly and soundly asleep. I would surely have awakened by no accident, but my husband knew I wanted to be up after a certain time and made sure I woke up. Hehe, no he didn’t smack me in the face.

It’s times like these that feel like I’m in an altered universe; I never used to get tired without having exhausted myself with physical activity. Today I’ve done nothing strenuous at all, and yet I am tired down to the bone in every part of my body. I swear, every ounce and inch of me is exhausted.

My hemonc ordered an MRI brain scan before I have any Avastin® while we await authorization for my new treatment and my Aranesp® injection. I’ve been reading about the use of Avastin with Taxol at various sites, but I’m including a link to the information I found at WebMD, which summarizes the use of Avastin in plain language. I will be researching and posting more links, but not tonight.

Tonight, I’m crawling into bed and snuggling up to my husband to dream sweet and feel safe.

5 6 7 8

Donna,

I am so glad you are writing this blog. I thought last year when I was diagnosed with CML that I would like to start a blog about treatment and my journey with cancer, but initially I was too exhausted to even lift my head off the pillow, and by the time I felt better, I was months behind on everything else. No time to write then.

I am glad to have this opportunity to dialogue with you again, although I wish, wish, wish it were under different circumstances.
Keep writing! I’m praying for your energy to come back, and that you will have the strength to keep going until it does.

And now, I too, am going to bed because it is the end of the week, and I am exhausted.

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