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Detours

Posted Nov 06 2009 10:00pm
I managed to keep my schedule for my October MRI and ten days of radiation to nip the pain producing cancer in my pelvis, making good use on my time between finishing my last chemo and starting the next regime. Two days before the scheduled MRI I noticed a few things I thought my neurosurgeon should know (trouble talking and mini-convulsion on my right side for about 30 seconds) so on the day I got the MRI I stopped by to leave a message and was told I should call him at the hospital on the next evening as he was out of town. He answered right away even though it was Saturday night and explained that the MRI showed some swelling around the Gamma rayed area and that if I had any leftover steroids (I got a three day supply each three weeks to deal with post chemo days but always stopped at two days because post chemo days have been okay.) I should take a big dose and go in to see him first thing Monday morning. He said that I should immediately take an ambulance any time if I had any seizures. The steroids did their job and I didn't need any emergency transportation.

After my 60 seconds of radiation on Monday, I stopped by neurosurgy and got more details and a presciption for more steroids plus an anticonvulsant and we made plans for to me check in to the National Cancer Center the next week for the final two days of radiation and another craniotomy. The kids and I spent the week getting ready for them to feed themselves and go to and their respective schools in time etc. We even got all the Halloween costumes together so the could go have fun at an annual party. I thought I'd been dragging them there all these years, turns out they were having fun and were game to go even if mom didn't drag them. Good friends were there watching out for them and the the three who went (J had school) say they had a good time.

Plans went well and I came home yesterday. I'm stuttering a bit but am improving as the part of my brain that work the motor control for speaking had a little trauma. I know that I don't sound like I usually do, but I can still speak in English or Japanese I consider any apraxia very mild.

I have appointments all week, some for getting ready for the new chemo (Tykerb and Xeloda, need to check liver and heart functions) and others for evaluating another "iffy" area in my brain for possibly another Gamma surgery. The nature of this breast cancer means it tends to keep popping up so I remain vigilant and zap when (and where) necessary.

Today I'm off to elementary school to check out this year's art display.
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