I had another support group meeting today. Only a few of us were able to make it and we got quite off topic for awhile (politics and religion- two of my LEAST favorite things to talk about!) but it was a good meeting. It is nice to be around others who may not be in the same situation as me but that do have a better understanding than most of what I am going thru. I noticed today that of all our members, the women are the ones with tumors. The men in the group are there to support their wives. Except one, he is the gamma knife nurse and founder of the group. I know men get brain tumors, so why are there no men in the group with tumors? Interesting. Also I am the only single one in the group so sometimes it makes me sad because everyone there has at some point brought someone else to a meeting who is part of their support system. My friend wanted to go with me but she had to work. But I do know that I have a strong support system. In fact I found out that the day I was diagnosed I was in the prayers of a Prayer Circle in Jerusalem (I think it was Jerusalem) My uncle has many friends online and he had people all over the world praying for me. Pretty cool huh?
Everyone at the meeting was thrilled to hear about my good MRI results.
After the meeting I had my appointment with the radiation oncologist. He said my hair will grow back, but it will take some time. He doesn't need to see me again until after my next MRI. Tomorrow I have an appointment with my neurologist and my physical therapy and I just realized today that I also have an appointment tomorrow at the eye doc to get a field of vision test. Busy day!
I am still fighting this near cold. It hasn't completely taken me over, but it is trying. I am fighting back with Airborne and Zicam and soon a nap. I did get some good sleep last night, except for the bad dream that I had another infection in my head! Man that would be horrible! But it is not possible, my surgery was almost 4 months ago. When I had the infection before it was majorly bad in two months. I have shown no signs what so ever of having an infection. It was just my fear coming alive in my dreams. Last night my scalp was bothering me, a weird tingling that is more annoying than painful. Then I found a spot on the top of my head near my scar from the surgeries that when pressed down seems to give, like there is nothing below it. That is probably why I had the dream. When I had the infection the patch on my head where the scalp was pulled back had some give to it because the infection was underneath. It was kinda gross. What I have now is just a soft spot. A place where the titanium netting is, at least that is what I think after looking at those X-Rays of my skull that I posted back in Oct or Nov.
Anyway... I am doing great, just a little worn out from my vacation to PA so I am going to take a nap.
TTFN
Everyone at the meeting was thrilled to hear about my good MRI results.
After the meeting I had my appointment with the radiation oncologist. He said my hair will grow back, but it will take some time. He doesn't need to see me again until after my next MRI. Tomorrow I have an appointment with my neurologist and my physical therapy and I just realized today that I also have an appointment tomorrow at the eye doc to get a field of vision test. Busy day!
I am still fighting this near cold. It hasn't completely taken me over, but it is trying. I am fighting back with Airborne and Zicam and soon a nap. I did get some good sleep last night, except for the bad dream that I had another infection in my head! Man that would be horrible! But it is not possible, my surgery was almost 4 months ago. When I had the infection before it was majorly bad in two months. I have shown no signs what so ever of having an infection. It was just my fear coming alive in my dreams. Last night my scalp was bothering me, a weird tingling that is more annoying than painful. Then I found a spot on the top of my head near my scar from the surgeries that when pressed down seems to give, like there is nothing below it. That is probably why I had the dream. When I had the infection the patch on my head where the scalp was pulled back had some give to it because the infection was underneath. It was kinda gross. What I have now is just a soft spot. A place where the titanium netting is, at least that is what I think after looking at those X-Rays of my skull that I posted back in Oct or Nov.
Anyway... I am doing great, just a little worn out from my vacation to PA so I am going to take a nap.
TTFN