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Surgery Update-PFO Closure

Posted Sep 29 2008 7:57pm

Update to my story:


It has been a long and mostly frustrating several months since the ordeal I spelled out in this article. I thought about pulling down my story and taking it off the web after I finally was cleared to have heart surgery to correct my PFO on May 1st. After much consideration, I felt it it important to leave the information and build on it to help raise awareness for stroke eduction.

Thank You

I have had such great support over the last several months during my recovery. Again, I want to thank everyone for their well wishes and their understanding over these past several months. I admit-it took some time for me to realize it, but I now know just how important it was to STOP all my running around and follow doctors orders to heal, both physically and emotionally. This also turned out to be a blessing on many levels and I want to let everyone know the real stroke hero has been my wife for staying so strong for me and our family. Thank you Lisa with all my heart.

The results have been excellent and well worth the long wait for me…

For the first time in more than 9 months I have a clear head. The surgery that repaired the hole in my heart has also instantly stopped the daily migraines and headaches I had been experiencing for all these months prior to surgery.

How could this happen and why does it take so long to get treatment? I don’t think doctors have the answers yet on many levels -but it has me completely intrigued. Regardless, I feel great and ready to get moving to raise awareness.

So, here’s how I hope you will help:I’ve teamed up with Tedy’s Team and the American Stroke Association- Here’s why:

Just like Tedy Bruschi, I was not aware of my heart birth defect until it caused my stroke. I know I am blessed to be on my way to a full recovery and it is my goal to help educate others who may also unknowingly be at risk. I am beginning locally to improve awareness and with your support and the help of great organizations like Tedy’s Team and The American Stroke Association I aim to bring this heart/brain/stroke connection to a national stage to get more answers.

Join me in the fight against stroke-and help save lives.

 

By the way…You proved to me there is a need

By posting my story on the web, my website received hundreds of “hits” after the first ezine issue where I discussed my stroke. When I looked at how folks landed on my site I noticed (now over 8oo hits to date) had arrived at my site by Google and Yahoo searches alone for the terms PFO and migraine. That was amazing to me just how many people are out there searching for information on these topics- much in the same manner I had been months earlier. The other interesting response was the feedback I received and responses where individuals recalled their own stories with similar struggles getting a diagnosis and treatment plan. My conviction to stay focused on launching a stroke awareness campaign was reaffirmed after reading your stories. As mentioned, I am establishing a dedicated blog http://knowstroke.wordpress.com to this topic and I urge anyone who wrote to me to please post their experiences (see Share Your Story on my blog) to build a forum for support.

If you choose to remain private I certainly understand your position, but please call me directly in confidence if you simply need to bend an ear. If you would like to speak to me personally about donations, fund raising ideas, or ways you could help raise awareness in your own neighborhood please call me directly at (401)632-0868

Please consider a donation to Tedy’s Team and the American Stroke Association here

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